TummyTrials: A Feasibility Study of Using Self-Experimentation to Detect Individualized Food Triggers
| Autor: | Roger Vilardaga, Julie A. Kientz, Jessica Schroeder, Daniel A. Epstein, James Fogarty, Ravi Karkar, Sean A. Munson, Jasmine Zia, Laura R. Pina, Jeffrey Scofield |
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| Rok vydání: | 2017 |
| Předmět: |
Self-experimentation
Self-Tracking Applied psychology 02 engineering and technology H.5.2. Information Interfaces and Presentation (e.g Article Field (computer science) Oral and gastrointestinal Irritable Bowel Syndrome Clinical Research 0202 electrical engineering electronic engineering information engineering Building 0501 psychology and cognitive sciences Everyday life 050107 human factors Simulation Personal Informatics Symptom Triggers Lived experience 05 social sciences Health condition Pain Research Business and Management Self tracking 020207 software engineering Self-Experimentation User Interfaces [HCI)] Health [J.3. Life and Medical Sciences] Food Chronic Pain Scientific validity Psychology Digestive Diseases Personally identifiable information |
| Zdroj: | CHI |
| Popis: | Diagnostic self-tracking, the recording of personal information to diagnose or manage a health condition, is a common practice, especially for people with chronic conditions. Unfortunately, many who attempt diagnostic self-tracking have trouble accomplishing their goals. People often lack knowledge and skills needed to design and conduct scientifically rigorous experiments, and current tools provide little support. To address these shortcomings and explore opportunities for diagnostic self-tracking, we designed, developed, and evaluated a mobile app that applies a self-experimentation framework to support patients suffering from irritable bowel syndrome (IBS) in identifying their personal food triggers. TummyTrials aids a person in designing, executing, and analyzing self-experiments to evaluate whether a specific food triggers their symptoms. We examined the feasibility of this approach in a field study with 15 IBS patients, finding that participants could use the tool to reliably undergo a self-experiment. However, we also discovered an underlying tension between scientific validity and the lived experience of self-experimentation. We discuss challenges of applying clinical research methods in everyday life, motivating a need for the design of self-experimentation systems to balance rigor with the uncertainties of everyday life. |
| Databáze: | OpenAIRE |
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