Process Evaluation of Home-based Bimanual Training in Children with Unilateral Cerebral Palsy (The COAD-study): A Mixed Methods Study

Autor: LWME Beckers, RJEM Smeets, MAC de Mooij, B Piškur, JJW van der Burg, EAA Rameckers, PBM Aarts, COAD Author Group, YJM Janssen-Potten
Přispěvatelé: Smeets, Rob/0000-0002-9503-366X, rameckers, eugene/0000-0001-6661-6500, Beckers, L. W. M. E., Smeets, R. J. E. M., de Mooij, M. A. C., Piskur, B., van der Burg, J. J. W., RAMECKERS, Eugene, Aarts, P. B. M., Janssen-Potten, Y. J. M., RS: CAPHRI - R3 - Functioning, Participating and Rehabilitation, Revalidatiegeneeskunde
Jazyk: angličtina
Rok vydání: 2022
Předmět:
Zdroj: Developmental Neurorehabilitation, 25, 246-262
Developmental Neurorehabilitation, 25(4), 246-262. Routledge/Taylor & Francis Group
Developmental Neurorehabilitation, 25, 4, pp. 246-262
ISSN: 1751-8431
1751-8423
Popis: Purpose To evaluate the processes and factors that influenced implementation and impact of a home-based bimanual training program in children with unilateral cerebral palsy aged 2 through 7 years. Methods The program encompassed bimanual task-specific training (3.5 hours/week for 12 weeks) adopting either implicit or explicit motor learning. A therapist and remedial educationalist coached parents. This mixed methods study included course attendance monitoring, questionnaires, registration form, video analysis, interviews, focus group discussion, and drop-out monitoring. Results Fourteen families participated. The program was not fully implemented as intended. Parents positively experienced the training and were well able to provide it. The program was demanding for the children and time-consuming for parents. Several components positively contributed to the program: task-analysis, instructional videos, and coaching by a therapist and remedial educationalist. Several modifications to the program were proposed. Conclusion Home-based bimanual training forms a demanding but promising therapeutic approach with potential for optimization. This work was supported by HandicapNL (former Revalidatiefonds), Johanna Kinderfonds, and Stichting Rotterdams Kinderrevalidatie Fonds Adriaanstichting in the 3rd Program Rehabilitation Research of ZonMw (the Netherlands Organization for Health Research and Development) under grant number 630000001; HandicapNL (former Revalidatiefonds) under grant number R2016006; and Stichting Vooruit under grant number 18–05/YvH/NS. We are grateful to the children, parents, and health-care professionals who participated in this study. We thank the COAD Author Group for their contribution: Nicole Brouwers, Anke Defesche, Hanneke Denissen, Rosemarie Derickx, Yvonne Geerdink, Kiki van Heel, Ruth Heijsen-van den Heuvel, Bregtje Janssen, Anne Jensen, Marjon Kissels, Martijn Klem, Denise Martens, Judith van Munster, Bianca Olive, Marleen Philippens, Caroline Scheijmans, Lucianne Speth, Ingrid van den Tillaar, and Eef Vennix. We acknowledge Les Hearn for proofreading the manuscript.
Databáze: OpenAIRE
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