International Consortium for Health Outcomes Measurement (ICHOM): Standardized Patient-Centered Outcomes Measurement Set for Heart Failure Patients
| Autor: | Gerasimos Filippatos, Victoria Parker, Sabrina Bernardez-Pereira, Jillian P. Riley, Jason Arora, Stephen Hutchison, Tina Kinsella, Theresa McDonagh, Carolyn S.P. Lam, Daniel J.P. Burns, Hans Persson, Hugh McIntyre, John F. Beltrame, Lynne W. Stevenson, Mariell Jessup, Richard Mindham, Oluwakemi Okunade, Marisa G. Crespo-Leiro, Luuk Otterspoor, Arno W. Hoes, Claude Pinnock, Louise Morgan, Michael Knapton, Christopher M. Reid, Suzanna M C Hardman, Frederick A. Masoudi |
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| Rok vydání: | 2020 |
| Předmět: |
quality and outcomes
Standardization media_common.quotation_subject 030204 cardiovascular system & hematology Health outcomes Article 03 medical and health sciences 0302 clinical medicine Patient-Centered Care Surveys and Questionnaires medicine Humans Quality (business) Patient Reported Outcome Measures 030212 general & internal medicine ICHOM International Consortium for Health Outcomes Measurement Set (psychology) Quality of Health Care media_common Heart Failure KCCQ Kansas City Cardiomyopathy Questionnaire business.industry Patient-centered outcomes MLHFQ Minnesota Living with Heart Failure Questionnaire medicine.disease PROM patient-reported outcome measure Heart failure Quality of Life epidemiology Medical emergency Cardiology and Cardiovascular Medicine business |
| Zdroj: | Jacc. Heart Failure |
| ISSN: | 2213-1779 |
| Popis: | Whereas multiple national, international, and trial registries for heart failure have been created, international standards for clinical assessment and outcome measurement do not currently exist. The working group’s objective was to facilitate international comparison in heart failure care, using standardized parameters and meaningful patient-centered outcomes for research and quality of care assessments. The International Consortium for Health Outcomes Measurement recruited an international working group of clinical heart failure experts, researchers, and patient representatives to define a standard set of outcomes and risk-adjustment variables. This was designed to document, compare, and ultimately improve patient care outcomes in the heart failure population, with a focus on global feasibility and relevance. The working group employed a Delphi process, patient focus groups, online patient surveys, and multiple systematic publications searches. The process occurred over 10 months, employing 7 international teleconferences. A 17-item set has been established, addressing selected functional, psychosocial, burden of care, and survival outcome domains. These measures were designed to include all patients with heart failure, whether entered at first presentation or subsequent decompensation, excluding cardiogenic shock. Sources include clinician report, administrative data, and validated patient-reported outcome measurement tools: the Kansas City Cardiomyopathy Questionnaire; the Patient Health Questionnaire-2; and the Patient-Reported Outcomes Measurement Information System. Recommended data included those to support risk adjustment and benchmarking across providers and regions. The International Consortium for Health Outcomes Measurement developed a dataset designed to capture, compare, and improve care for heart failure, with feasibility and relevance for patients and clinicians worldwide. Central Illustration Highlights • ICHOM seeks to help standardize and align outcome measurement efforts globally. • Standardization and alignment of this sort does not exist for heart failure. • The heart failure working group developed a standard set of 17 outcomes to be measured. • ICHOM hopes this standardization effort will increase quality and value in heart failure care. |
| Databáze: | OpenAIRE |
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