Caregiver decisions along the Alzheimer's disease trajectory
| Autor: | Jason T. Slyer, Marie Truglio-Londrigan |
|---|---|
| Rok vydání: | 2019 |
| Předmět: |
Male
Disease specific media_common.quotation_subject Decision Making Applied psychology Disease 03 medical and health sciences 0302 clinical medicine Alzheimer Disease Humans 030212 general & internal medicine Qualitative Research media_common Disease trajectory Qualitative descriptive Uncertainty Focus Groups Focus group Negotiation Harm Caregivers Quality of Life Female Psychology Gerontology Healthcare providers 030217 neurology & neurosurgery |
| Zdroj: | Geriatric Nursing. 40:257-263 |
| ISSN: | 0197-4572 |
| DOI: | 10.1016/j.gerinurse.2018.10.015 |
| Popis: | Despite the rising prevalence of Alzheimer's disease (AD), there is limited systematic evidence about disease specific decisions. The aim of this qualitative descriptive study was to identify decisions across the AD trajectory using focus groups of past and present caregivers. Qualitative content analysis revealed three main categories with corresponding categories and sub-categories. Main Category One-Decisions pertaining to self-yielded two categories: decision pertaining to the offering of self and care for the caregiver. Main Category Two-Decisions pertaining to the patient-yielded three categories: decisions about care and treatment, living arrangements, and protecting the patient from harm. Main Category Three-Communication and relationships in decisions-yielded two categories: navigation and negotiations. The results of this study will inform healthcare providers and caregivers as they work together to anticipate, prepare, and plan for care management decisions over the AD trajectory. |
| Databáze: | OpenAIRE |
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