Psychosocial issues in children with primary intestinal failure and their families
| Autor: | Maria Angela Caiazzo, Annunziata Officioso, Natascia Baiano, Ilaria Liguoro, Maria Immacolata Spagnuolo, Alfredo Guarino, F. Chiatto, Antonietta Giannattasio |
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| Přispěvatelé: | Spagnuolo, MARIA IMMACOLATA, Chiatto, Fabrizia, Liguoro, Ilaria, Caiazzo, MARIA ANGELA, Baiano, Natascia, Giannattasio, Antonietta, Officioso, Annunziata, Guarino, Alfredo |
| Jazyk: | angličtina |
| Rok vydání: | 2013 |
| Předmět: |
Quality of life
medicine.medical_specialty Pediatrics Nutrition and Dietetics business.industry Well-being Mean age Intestinal failure Critical Care and Intensive Care Medicine Parenteral nutrition International Classification of Functioning Disability and Health Medicine Anxiety Children ICF-CY medicine.symptom business Psychiatry Psychosocial |
| Popis: | Introduction: Parenteral nutrition has significantly improved the prognosis of children with intestinal failure, but it has an inevitable impact on their lives. The aim of the present study was to assess the psychosocial well-being of these patients and their families. Materials and methods: Two groups of children (cases and controls) were enrolled with their families. Patients with primary intestinal failure aged 2-18 years who required or had previously required parenteral nutritional and healthy controls were included. We used four tests to investigate their quality of life, three administered to parents and one to children. Results: Sixteen children with primary intestinal failure (12 males; mean age 7.2 ± 4.8 years) and 12 healthy controls (6 males; mean age 9.3 ± 4.9 years) were enrolled. The International Classification of Functioning, Disability and Health, Children and Youth Version showed that specific environmental factors were perceived as barriers by patients’ caregivers (44% vs 0%; p=0.01) and 5/16 (31%) of them had medium-high levels of anxiety according to the State-Trait Anxiety Inventory. Conclusions: The quality of life of children on parenteral nutrition was only slightly impaired. Parents, instead, showed more anxious behavior related to their children’s parenteral nutrition. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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