Use of a Community-Based Participatory Research Approach to Assess Knowledge, Attitudes, and Beliefs on Biospecimen Research Among Pacific Islanders

Autor: Melanie Sabado, Greta Briand, Lola Sablan-Santos, Jane Ka'ala Pang, Sora Park Tanjasiri, Patchareeya P. Kwan, Jonathan Tana Lepule, Dorothy Schmidt-Vaivao, Cevadne Lee, Vanessa Tui’one, Paula H. Palmer
Rok vydání: 2014
Předmět:
Zdroj: Health Promotion Practice. 15:422-430
ISSN: 1552-6372
1524-8399
DOI: 10.1177/1524839913516464
Popis: Objectives. The purpose of this article is to describe a community-based participatory research pilot project conducted to investigate the knowledge, attitudes, and beliefs that Pacific Islanders (PIs) hold toward biospecimen collection, use, and banking, all of which will help drive higher PI participation rates in both medical and behavioral research studies. Method. Academic and community partners worked side by side to develop a conceptual model, study measures, and study protocols. PI community partners screened, recruited, and conducted data collection, which consisted of a paper-and-pencil survey and a 1-hour semistructured interview administered by trained community workers. Results. A total of 60 PI adults representing various PI ethnic groups completed the surveys and interviews. Results showed a general support for biospecimen studies that would benefit the community, and many are willing to provide their biospecimen samples if asked. Conclusion. Due to the established level of trust, community partners were able to successfully recruit and collect data for the study. Many of those interviewed also called for more outreach and education about the importance of biospecimen research in their communities.
Databáze: OpenAIRE