Genetic Discrimination: A Case for a European Legislative Response?
| Autor: | Aisling de Paor |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
Emerging technologies
media_common.quotation_subject Legislation 0603 philosophy ethics and religion 03 medical and health sciences 0302 clinical medicine Political science Humans Genetic Testing Genetic discrimination Genetic Privacy Law and economics media_common Human rights Health Policy Legislature 06 humanities and the arts Europe 030220 oncology & carcinogenesis Law Convention on the Rights of Persons with Disabilities Position (finance) Health law 060301 applied ethics Prejudice |
| Zdroj: | European Journal of Health Law. 24:135-159 |
| ISSN: | 1571-8093 |
| DOI: | 10.1163/15718093-12453366 |
| Popis: | With rapid scientific and technological advances, a new genetic era is emerging. However, these advances raise ethical and legal issues, particularly genetic discrimination, that may threaten advancing science in the absence of appropriate regulation. There is currently no concrete legislative position in this area at eu level, but rather a patchwork of diverging legislative approaches amongst Member States. Genetic discrimination has been singled out as an area of reform in Europe as evidenced, for example in eu Charter of Fundamental Rights, Article 21.1 prohibiting discrimination based on ‘genetic features.’ The United Nations Convention on the Rights of Persons with Disabilities also informs this debate and may spur legislative action. From a transatlantic perspective, the United States’ federal legislation (Genetic Information Non Discrimination Act) is noteworthy. Considering scientific and technological developments, the rights at stake and the various regulatory benchmarks, this paper explores the regulation of genetic information in the eu. |
| Databáze: | OpenAIRE |
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