The Thai version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Autor: Sirisucha Soponkanaporn, Alessandro Consolaro, Francesca Bovis, Tapanee Pipatkullachart, Nicolino Ruperto, Dara Mairiang, Butsabong Lerkvaleekul, Soamarat Vilaiyuk
Rok vydání: 2017
Předmět:
Gerontology
Male
Parents
Psychometrics
Health Status
Health-related quality of life
Arthritis
Disease status
Functional ability
JAMAR
Juvenile idiopathic arthritis
Rheumatology
Immunology and Allergy
Immunology
Disability Evaluation
0302 clinical medicine
Medicine
Age of Onset
Child
Prognosis
Thailand
Predictive value of tests
Child
Preschool
Female
musculoskeletal diseases
medicine.medical_specialty
Adolescent
Patients
03 medical and health sciences
Quality of life (healthcare)
Predictive Value of Tests
030225 pediatrics
Internal medicine
Juvenile
Humans
Patient Reported Outcome Measures
Validation Studies
030203 arthritis & rheumatology
Cultural Characteristics
business.industry
Reproducibility of Results
Translating
medicine.disease
Arthritis
Juvenile
Case-Control Studies
Quality of Life
Age of onset
business
Zdroj: Rheumatology International
ISSN: 1437-160X
Popis: The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Thai language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 104 JIA patients (45.2% systemic JIA, 10.6% oligoarticular, 9.6% RF negative polyarthritis, 34.6% other categories) and 102 healthy children, were enrolled in one paediatric rheumatology centre. Notably, none of the enrolled JIA patients is affected with psoriatic arthritis or undifferentiated arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Thai version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Databáze: OpenAIRE
Externí odkaz: