Trends and predictions for survival and mortality in individuals with Down syndrome in Brazil: A 21‐year analysis

Autor:	Eny Maria Goloni-Bertollo, J. S. de Melo‐Neto, Érika Cristina Pavarino, F. de Campos Gomes
Rok vydání:	2020
Předmět:	Adult Male 030506 rehabilitation Down syndrome Adolescent Databases Factual Population Ethnic group Affect (psychology) Young Adult 03 medical and health sciences Arts and Humanities (miscellaneous) Intellectual disability medicine Risk of mortality Humans 0501 psychology and cognitive sciences Mortality Child education education.field_of_study Proportional hazards model business.industry Mortality rate 05 social sciences Rehabilitation Infant Middle Aged medicine.disease Psychiatry and Mental health Socioeconomic Factors Neurology Child Preschool Female Neurology (clinical) Down Syndrome 0305 other medical science business Brazil 050104 developmental & child psychology Demography
Zdroj:	Journal of Intellectual Disability Research. 64:551-560
ISSN:	1365-2788 0964-2633
DOI:	10.1111/jir.12735
Popis:	BACKGROUND Regional heterogeneities and sociodemographic characteristics affect mortality and population survival in Brazil. However, for individuals with Down syndrome (DS) this information remains unknown. In this study, we analysed survival and mortality rates among DS individuals in the five Brazilian geographic regions. In addition, we investigated whether there is an association between mortality and sociodemographic factors across administrative regions. METHODS Data between 1996 and 2016, comprising 10 028 records of deaths of individuals with DS, were collected from database records of the Department of Informatics of the Unified Health System. Data on race/ethnicity, sex, age and years of schooling were defined for the association analyses. Survival data were analysed according to the Kaplan-Meier method and Cox regression model. RESULTS The number of deaths among people with DS has increased in recent years. Children are more susceptible to death, especially in the first years of life. Individuals living in the northern region, Indigenous women and people with no years of schooling have higher mortality. In the Southeast and South region, for White and Yellow, survival is related to a higher level of education. Ethnic factors and years of schooling influence risk for mortality across the administrative regions. CONCLUSIONS These findings show that sociodemographic characteristics affect survival and are associated with the risk of mortality for people with DS. In addition, this suggests that differences in access to health services among Brazilian regions, especially in the first years of life, may affect the survival of individuals with DS.
Databáze:	OpenAIRE
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