Survey on the perception of germline genome editing among the general public in Japan
| Autor: | Akiko Nagai, Kaori Muto, Masato Uchiyama |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
Adult
Male 0301 basic medicine media_common.quotation_subject Clinical settings Disease Brief Communication Young Adult 03 medical and health sciences 0302 clinical medicine Japan Genome editing Surveys and Questionnaires Perception Genetics Humans 030212 general & internal medicine Genetics (clinical) Aged media_common Ethics Gene Editing Government Ethical issues business.industry Genetic Diseases Inborn Genetic Therapy Awareness Middle Aged Public relations Germ Cells 030104 developmental biology Risk factors Public Opinion Female business Psychology Attitude to Health |
| Zdroj: | Journal of Human Genetics |
| ISSN: | 1435-232X 1434-5161 |
| Popis: | Genome editing of human embryos could become a fundamental treatment approach for genetic diseases; however, a few technical and ethical issues need to be resolved before its application in clinical settings. Presently, the Japanese government has issued a statement prohibiting human germline editing and emphasizing the need for discussions that include a wide range of perspectives. However, current discussions tend to exclude the general public. Therefore, we conducted a survey of 10,881 general adults and 1044 patients in Japan who indicated that their disease conditions are related to their genetic makeup, and clarified their attitude toward this technology. The results clearly indicated that the Japanese people generally accepted the use of genome editing for disease-related genes, but many were concerned about the risks. In addition, many Japanese people did not understand the technology well. To improve awareness and understanding about genome editing, it is important that scientists and science communicators create opportunities for the public to participate in relevant discussions without harming vulnerable participants. It is also important to continuously track changes in the acceptance of genome editing by the public. |
| Databáze: | OpenAIRE |
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