This is not part of my life plan’: a qualitative study on the psychosocial experiences and practical challenges in young adults with cancer age 25 to 39 years at diagnosis
| Autor: | Emily Travis, Zoltan Szucs, Meera Nandhabalan, Eugenie Younger, Amy Din, Michael Gonzalez, Winette T. A. van der Graaf, Neelam Sarpal, Anne-Sophie Darlington, Susannah Stanway, Susana Banerjee, Penelope Edwards, Marielle Nobbenhuis, Bhawna Sirohi, Carla Vlooswijk, Emma Lidington, Olga Husson, James Larkin, Kate Stallard, Nikki Hunter, Denise Flett, Naureen Starling |
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| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Gerontology
Adult Adolescent media_common.quotation_subject Disease 03 medical and health sciences Young Adult 0302 clinical medicine Neoplasms Adaptation Psychological Medicine Humans Social isolation Young adult Child Normality Qualitative Research media_common business.industry Uncertainty Focus Groups Focus group Oncology 030220 oncology & carcinogenesis medicine.symptom Thematic analysis business Psychosocial Qualitative research |
| Popis: | Objective: Adolescents and young adults with cancer face unique psychosocial and practical issues. However, patients across this group encounter different life experiences, cancer diagnoses and treatment settings given the tailored services for patients ages 15 to 24. Here, we qualitatively explore the psychosocial experiences and practical challenges of young adults (YAs) with cancer diagnosed between ages 25 and 39 in the United Kingdom. Methods: We invited YAs diagnosed with cancer in the 5 years prior to enrolment at participating sites to take part in semi-structured interviews or focus groups. Transcripts were analysed using inductive thematic analysis. Two YA patients reviewed the results to ensure robustness. Results: Sixty-five YAs with varied diagnoses participated. Participants struggled to balance work, childcare and financial solvency with treatment. The halt in family and work life as well as changes in image and ability threatened participants’ identity and perceived ‘normality’ as a YA, however, these also stimulated positive changes. YAs experienced social isolation from friends and family, including children. Many struggled to cope with uncertainty around treatment outcomes and disease recurrence. Conclusion: The disruption of family and work life can lead to age-specific issues in YAs diagnosed with cancer. Age-tailored psychological and practical services must be considered. |
| Databáze: | OpenAIRE |
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