| Autor: |
Anneliese Synnot, Kelvin Hill, Julie Davey, Kevin English, Samuel L. Whittle, Rachelle Buchbinder, Suzie May, Heath White, Alexander Meredith, Eleanor Horton, Rebecca Randall, Anneka Patel, Stella O'Brien, Tari Turner |
| Rok vydání: |
2023 |
| Předmět: |
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| Zdroj: |
Journal of Clinical Epidemiology. 155:97-107 |
| ISSN: |
0895-4356 |
| DOI: |
10.1016/j.jclinepi.2022.12.020 |
| Popis: |
To describe and reflect on the consumer engagement approaches used in five living guidelines from the perspectives of consumers (i.e., patients, carers, the public and their representatives) and guideline developers.In a descriptive report, we used a template to capture engagement approaches and the experiences of consumers and guideline developers in living guidelines in Australia and the UK. Responses were summarised using descriptive synthesis.One guideline used a Consumer Panel, three included two to three consumers in the guideline development group and one did both. Much of our experience was common to all guidelines (e.g., consumers felt welcome but that their role initially lacked clarity). We identified six challenges and opportunities specific to living guidelines: managing the flow of work; managing engagement in online environments; managing membership of the panel; facilitating more flexibility, variety and depth in engagement; recruiting for specific skills - although these can be built over time; developing living processes to improve and adapt consumer engagement together.Consumer engagement in living guidelines should follow established principles of consumer engagement in guidelines. Conceiving the engagement as living, underpinned by a living process evaluation, allows the approach to be developed with consumers over time. |
| Databáze: |
OpenAIRE |
| Externí odkaz: |
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