Stakeholder Perspectives on Research and Practice in Autism and Transition
| Autor: | Kristy A. Anderson, Alice A. Kuo, Tara Crapnell, Paul T. Shattuck, Lynette Lau |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
Adult
Male Transition to Adult Care Biomedical Research Autism Spectrum Disorder media_common.quotation_subject Health Personnel Developmental psychology Interviews as Topic 03 medical and health sciences 0302 clinical medicine Stakeholder Participation 030225 pediatrics Perception medicine Humans Family media_common business.industry Transition (fiction) 05 social sciences Stakeholder 050301 education Multidisciplinary Collaboration Service provider medicine.disease Autism spectrum disorder Pediatrics Perinatology and Child Health Autism Female business 0503 education Qualitative research |
| Zdroj: | Pediatrics. 141(Suppl 4) |
| ISSN: | 1098-4275 |
| Popis: | OBJECTIVES: Individuals with autism spectrum disorder (ASD) are reported to experience significant challenges during the transition to adulthood. Although recent evidence indicates that individuals with ASD experience poor outcomes in adulthood, little is understood about the contributing factors. In this qualitative study, we investigated the barriers to and needs in research and practice in the transition to adulthood among individuals with ASD. METHODS: Thirteen researchers, including service providers, family members, and an individual with ASD participated in 30- to 60-minute, semistructured, open-ended telephone interviews. Interviews were transcribed, and data were analyzed by using an inductive approach to identify themes related to barriers to and needs in the transition to adulthood for youth with ASD. RESULTS: Stakeholders identified the need for transition planning and preparation to begin earlier and for systems to better accommodate the interests and varying abilities of individuals with ASD. Stakeholders also felt that parent and service provider expectations and perceptions influence early opportunities and experiences offered throughout the transition process. CONCLUSIONS: This study reveals the multilevel barriers to and needs in the transition to adulthood and the need for interagency and multidisciplinary collaboration and research to address the varying levels of needs, abilities, and multisector challenges. |
| Databáze: | OpenAIRE |
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