Longitudinal family caregiving experiences in heart failure: Secondary qualitative analysis of interviews
| Autor: | Barbara Birriel, Soyoung Choi, Judith E. Hupcey, Lisa Kitko |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
Pulmonary and Respiratory Medicine
Coping (psychology) Palliative care media_common.quotation_subject 030204 cardiovascular system & hematology Critical Care and Intensive Care Medicine 03 medical and health sciences Social support 0302 clinical medicine Nursing Adaptation Psychological Health care Humans Medicine Family Qualitative Research media_common Heart Failure business.industry Family caregivers Palliative Care Social Support Caregivers 030228 respiratory system Content analysis Grief Cardiology and Cardiovascular Medicine business Qualitative research |
| Zdroj: | Heart & Lung. 50:627-633 |
| ISSN: | 0147-9563 |
| Popis: | Background Considering the potential impacts of family caregivers on heart failure management and the costs of healthcare, health professionals need to pay attention to the challenges faced by family caregivers. Objective This study longitudinally explored the caregiving experiences of family caregivers of persons with heart failure. Methods Serial interview scripts collected from 53 family caregivers were analyzed using a content analysis method. Results The following themes emerged: (1) accumulating knowledge and skills for caregiving; (2) losing a sense of control; (3) balancing an unstable life; (4) constructing illness memory; (5) centering the patient in daily life; (6) accepting the loss of a family member; (7) coping with grief by drawing on social support; (8) facing financial responsibility; and (9) rethinking hospice care. Conclusion Family caregivers experience concern about unpredictable caregiving years, disease's fluctuating symptoms and poor prognosis. More educational opportunities, financial counseling programs, and palliative care consultations should be provided. |
| Databáze: | OpenAIRE |
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