Experiences of patients with cancer with information and support for psychosocial consequences of reduced ability to eat: a qualitative interview study
| Autor: | Vera E IJmker-Hemink, Manon G.A. van den Berg, Yvonne Wijnholds-Roeters, Rianne van Lieshout, Maggy Youssef-El Soud, Sandra Beijer, Natasja J H Raijmakers, Nora Lize |
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| Rok vydání: | 2021 |
| Předmět: |
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Pain medicine Health Personnel Emotions lnfectious Diseases and Global Health Radboud Institute for Molecular Life Sciences [Radboudumc 4] Psycho-oncology Anger Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18] Pleasure 03 medical and health sciences 0302 clinical medicine Neoplasms Medicine Humans 030212 general & internal medicine Qualitative Research media_common business.industry Nursing research Sadness Oncology Caregivers 030220 oncology & carcinogenesis business Psychosocial Qualitative research Clinical psychology |
| Zdroj: | Supportive Care in Cancer, 29, 6343-6352 Supportive Care in Cancer, 29, 11, pp. 6343-6352 |
| ISSN: | 0941-4355 |
| Popis: | Contains fulltext : 238415.pdf (Publisher’s version ) (Closed access) PURPOSE: Patients with cancer may experience emotions such as anger or sadness due to tumour- or treatment-related reduced ability to eat. These emotions can be provoked by patients' own struggle with eating, by misunderstanding of their struggle by others, or by less pleasure in social activities. Literature indicates that patients with cancer may experience a lack of information and support regarding psychosocial consequences of reduced ability to eat. The aim of this qualitative study is to gain insights into experiences with this information and support. METHOD: Transcripts of semi-structured interviews with 24 patients with cancer who experience(d) psychosocial consequences of reduced ability to eat were thematically analysed. Interviews were recorded, transcribed verbatim, and analysed using Atlas.ti. RESULTS: Patients expressed positive experiences with information and support for psychosocial consequences of reduced ability to eat while receiving multidisciplinary recognition and personalised care. Patients expressed negative experiences when healthcare professionals only assessed topics within their own expertise, or when healthcare professionals mainly focused on their nutritional intake. Informal support for reduced ability to eat was positively evaluated when informal caregivers tried to understand their situation. Evaluation of informal practical support varied among patients. CONCLUSION: Patients with cancer who experience psychosocial consequences of reduced ability to eat both need professional and informal support. Recognition of these consequences from healthcare professionals is important, as well as understanding from informal caregivers. |
| Databáze: | OpenAIRE |
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