Patient empowerment through a user-centered design of an electronic personal health record: a qualitative study of user requirements in chronic kidney disease
| Autor: | Zahra Niazkhani, Khadijeh Makhdoomi, Habibollah Pirnejad, Esmaeel Toni, Azam Mivefroshan |
|---|---|
| Přispěvatelé: | Health Care Governance (HCG) |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Adult
Developing country Computer applications to medicine. Medical informatics R858-859.7 Health Informatics Health literacy Iran Unified theory of acceptance and use of technology Health informatics Chronic disease Nursing SDG 3 - Good Health and Well-being Chronic kidney disease CKD Self-management Humans Renal Insufficiency Chronic Chronic care User-centered design ePHR business.industry Research Health Policy Electronic personal health record Focus group Computer Science Applications Health Records Personal Nephrology User requirements Electronics Patient Participation business Psychology User-Centered Design Qualitative research |
| Zdroj: | BMC Medical Informatics and Decision Making, Vol 21, Iss 1, Pp 1-15 (2021) BMC Medical Informatics and Decision Making, 21(1):329. BioMed Central Ltd. BMC Medical Informatics and Decision Making |
| ISSN: | 1472-6947 |
| Popis: | Background To improve chronic disease outcomes, self-management is an effective strategy. An electronic personal health record (ePHR) is a promising tool with the potential to support chronic patient’s education, counseling, and self-management. Fitting ePHRs within the daily practices of chronic care providers and chronic patients requires user-centered design approaches. We aimed to understand users’ needs and requirements in chronic kidney disease (CKD) care to consider in the design of an ePHR to facilitate its implementation, adoption, and use. Methods A qualitative study was conducted in a major Iranian nephrology center including inpatient and outpatient settings in 2019. We conducted 28 semi-structured interviews with CKD patients, nurses, and adult nephrologists. To confirm or modify the requirements extracted from the interviews, a focus group was also held. Data were analyzed to extract especially those requirements that can facilitate implementation, adoption, and sustained use based on the PHR adoption model and the unified theory of acceptance and use of technology. Results Participants requested an ePHR that provides access to up to date patient information, facilitates patient-provider communication, and increases awareness about patient individualized conditions. Participants expected a system that is able to cater to low patient e-health literacy and high provider workload. They requested the ePHR to include purposeful documentation of medical history, diagnostic and therapeutic procedures, tailored educational content, and scheduled care reminders. Messaging function, tailored educational content to individual patients’ conditions, and controlled access to information were highly valued in order to facilitate its implementation, adoption, and use. Conclusions We focused on the ePHR’s content and functionalities in the face of facilitators and/or barriers envisioned for its adoption in nephrology care. Designers and implementers should value CKD patients’ needs and requirements for self-management such as providing personalized education and counseling (on the basis of their condition and risk factors), health literacy, and disease progression levels. The socio-technical aspects of care also need further attention to facilitate ePHR’s adoption. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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