The Adolescent and Caregiver Sickle Cell Disease Self-management Skills Checklist: Preliminary Reliability and Validity
| Autor: | Jerlym S. Porter, Rebecca Rupff, Jane S. Hankins, Justin L Williams, Megan Loew, Kathryn M. Russell |
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| Rok vydání: | 2019 |
| Předmět: |
Adult
Male Adolescent Psychometrics MEDLINE Anemia Sickle Cell Disease 03 medical and health sciences 0302 clinical medicine Cronbach's alpha Health care Humans Medicine Child Reliability (statistics) business.industry Retrospective cohort study Hematology Checklist Self Care Caregivers Oncology 030220 oncology & carcinogenesis Pediatrics Perinatology and Child Health Female business 030215 immunology Clinical psychology |
| Zdroj: | Journal of Pediatric Hematology/Oncology. 42:12-19 |
| ISSN: | 1077-4114 |
| Popis: | Adolescents with sickle cell disease (SCD) need assistance in developing the knowledge and skills that contribute to increased disease self-management and successful transition to adult-based health care. This study evaluated the preliminary psychometric properties of the Self-Management Skills Checklist (SMSC and SMSC-C; Adolescent and Caregiver versions), a measure of perceived SCD-specific knowledge and skills. A retrospective cohort study included 114 adolescents (mean=15.6 y) and their caregivers. We examined internal structure and reliability, score changes over time, and group differences. Cronbach coefficient alphas were 0.79 and 0.74 for caregiver-reported Skills and caregiver-reported knowledge, respectively, and 0.77 and 0.44 for adolescent-reported skills and adolescent-reported knowledge, respectively, indicating good internal consistency for 3 of the subscales. Poor reliability in the adolescent-reported knowledge summary score and factor analysis suggest an interpretation item-by-item, independent of one another. Participant group differences in age and chronic transfusion treatment existed in both summary and subscale scores of the SMSC and SMSC-C. Follow-up administrations of the scales indicated an increase in caregiver-reported skills for their adolescents from time 1 scores (M=3.72±0.83) to time 2 scores (M=3.99±0.63) (t16=2.178, P=0.045). Findings provide preliminary support for the usage of the SMSC and continued development to improve its psychometrics. |
| Databáze: | OpenAIRE |
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