Urban-Dwelling Community Members’ Views on Biomedical Research Engagement
Autor: | Robert J. Lucero, José A. Luchsinger, Adriana Arcia, Yamnia I Cortes, Joan A. Kearney |
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Rok vydání: | 2016 |
Předmět: |
Adult
Sociology of scientific knowledge Biomedical Research Adolescent Research Subjects Process (engineering) Disclosure Trust Article Young Adult 03 medical and health sciences 0302 clinical medicine Humans 030212 general & internal medicine Public engagement Qualitative Research Aged Aged 80 and over Hierarchy 030505 public health business.industry Public Health Environmental and Occupational Health Fear Middle Aged Public relations Transparency (behavior) Focus group Socioeconomic Factors Content analysis 0305 other medical science Psychology business Social psychology Qualitative research |
Zdroj: | Qualitative Health Research. 27:130-137 |
ISSN: | 1552-7557 1049-7323 |
Popis: | In this study, we explore community members’ overall understanding and experience with biomedical research engagement. We conducted a qualitative analysis to explore a concept that emerged but was not specifically addressed in a pre-existing dataset obtained using four focus group sessions with 30 urban-dwelling community members. Transcripts were read in an iterative process, and an emergent content analysis was performed. Five main themes were identified: (a) engaging in research to contribute to personal or greater good, (b) hierarchy of trust, (c) the importance of disclosure and transparency, (d) practical barriers to research engagement, and (e) fear of research procedures. Community members view research engagement as a collaborative process whereby community members and researchers are involved in all stages of the investigation. Focusing on research engagement, and not merely participation, may enhance community knowledge of the research process and advance scientific knowledge. |
Databáze: | OpenAIRE |
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