The agreement between chronic diseases reported by patients and derived from administrative data in patients undergoing joint arthroplasty
Autor: | Jan van der Meulen, Sujith Konan, Andrew Hutchings, Bélène Podmore |
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Jazyk: | angličtina |
Rok vydání: | 2019 |
Předmět: |
Adult
Male medicine.medical_specialty Adolescent Epidemiology medicine.medical_treatment Arthroplasty Replacement Hip Administrative data Health Informatics Disease 03 medical and health sciences Young Adult 0302 clinical medicine Internal medicine Diabetes mellitus Surveys and Questionnaires Outcome Assessment Health Care medicine Humans In patient 030212 general & internal medicine Patient Reported Outcome Measures Arthroplasty Replacement Knee Medical Record Administrators Aged Aged 80 and over lcsh:R5-920 business.industry Patient-report 030503 health policy & services Multiple sclerosis Middle Aged medicine.disease Arthroplasty Knee arthroplasty Blood pressure England Chronic diseases Chronic Disease Quality of Life Hip arthroplasty Patient-reported outcome Female 0305 other medical science business lcsh:Medicine (General) Kidney disease Research Article |
Zdroj: | BMC Medical Research Methodology, Vol 19, Iss 1, Pp 1-9 (2019) BMC Medical Research Methodology |
ISSN: | 1471-2288 |
Popis: | Background This study examined the agreement between patient-reported chronic diseases and hospital administrative records in hip or knee arthroplasty patients in England. Methods Survey data reported by 676,428 patients for the English Patient Reported Outcome Measures (PROMs) programme was linked to hospital administrative data. Sensitivity and specificity of 11 patient-reported chronic diseases were estimated with hospital administrative data as reference standard. Results Specificity was high (> 90%) for all 11 chronic diseases. However, sensitivity varied by disease with the highest found for ‘diabetes’ (87.5%) and ‘high blood pressure’ (74.3%) and lowest for ‘kidney disease’ (18.8%) and ‘leg pain due to poor circulation’ (26.1%). Sensitivity was increased for diseases that were given as specific examples in the questionnaire (e.g. ‘parkinson’s disease’ (65.6%) and ‘multiple sclerosis’ (69.5%), compared to ‘diseases of the nervous system’ (20.9%)). Conclusions Patients can give information about the presence of chronic diseases that is consistent with chronic diseases derived from hospital administrative data if the description in the patient questionnaire is precise and if the disease is familiar to most patients and has significant impact on their life. Such patient questionnaires need to be validated before they are used for research and service evaluation projects. Electronic supplementary material The online version of this article (10.1186/s12874-019-0729-5) contains supplementary material, which is available to authorized users. |
Databáze: | OpenAIRE |
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