The agreement between chronic diseases reported by patients and derived from administrative data in patients undergoing joint arthroplasty

Autor: Jan van der Meulen, Sujith Konan, Andrew Hutchings, Bélène Podmore
Jazyk: angličtina
Rok vydání: 2019
Předmět:
Adult
Male
medicine.medical_specialty
Adolescent
Epidemiology
medicine.medical_treatment
Arthroplasty
Replacement
Hip
Administrative data
Health Informatics
Disease
03 medical and health sciences
Young Adult
0302 clinical medicine
Internal medicine
Diabetes mellitus
Surveys and Questionnaires
Outcome Assessment
Health Care
medicine
Humans
In patient
030212 general & internal medicine
Patient Reported Outcome Measures
Arthroplasty
Replacement
Knee
Medical Record Administrators
Aged
Aged
80 and over
lcsh:R5-920
business.industry
Patient-report
030503 health policy & services
Multiple sclerosis
Middle Aged
medicine.disease
Arthroplasty
Knee arthroplasty
Blood pressure
England
Chronic diseases
Chronic Disease
Quality of Life
Hip arthroplasty
Patient-reported outcome
Female
0305 other medical science
business
lcsh:Medicine (General)
Kidney disease
Research Article
Zdroj: BMC Medical Research Methodology, Vol 19, Iss 1, Pp 1-9 (2019)
BMC Medical Research Methodology
ISSN: 1471-2288
Popis: Background This study examined the agreement between patient-reported chronic diseases and hospital administrative records in hip or knee arthroplasty patients in England. Methods Survey data reported by 676,428 patients for the English Patient Reported Outcome Measures (PROMs) programme was linked to hospital administrative data. Sensitivity and specificity of 11 patient-reported chronic diseases were estimated with hospital administrative data as reference standard. Results Specificity was high (> 90%) for all 11 chronic diseases. However, sensitivity varied by disease with the highest found for ‘diabetes’ (87.5%) and ‘high blood pressure’ (74.3%) and lowest for ‘kidney disease’ (18.8%) and ‘leg pain due to poor circulation’ (26.1%). Sensitivity was increased for diseases that were given as specific examples in the questionnaire (e.g. ‘parkinson’s disease’ (65.6%) and ‘multiple sclerosis’ (69.5%), compared to ‘diseases of the nervous system’ (20.9%)). Conclusions Patients can give information about the presence of chronic diseases that is consistent with chronic diseases derived from hospital administrative data if the description in the patient questionnaire is precise and if the disease is familiar to most patients and has significant impact on their life. Such patient questionnaires need to be validated before they are used for research and service evaluation projects. Electronic supplementary material The online version of this article (10.1186/s12874-019-0729-5) contains supplementary material, which is available to authorized users.
Databáze: OpenAIRE
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