Developmentally appropriate supported self-management for children and young people with chronic conditions: A consensus
| Autor: | Malcolm Battersby, Sean Beggs, Karen Ford, Sharon Lawn, Nicole Saxby |
|---|---|
| Rok vydání: | 2019 |
| Předmět: |
Adult
Male Chronic condition Consensus Adolescent Delphi Technique media_common.quotation_subject Delphi method Likert scale 03 medical and health sciences 0302 clinical medicine Surveys and Questionnaires Humans 030212 general & internal medicine Child media_common Medical education Self-management 030503 health policy & services Self-Management Infant Newborn Infant Developmentally Appropriate Practice General Medicine Middle Aged Chronic disease Child Preschool Chronic Disease Female Clinical education 0305 other medical science Psychology Autonomy |
| Zdroj: | Patient education and counseling. 103(3) |
| ISSN: | 1873-5134 |
| Popis: | Objective/s To create a consensus list of self-management definitions, recommendations, and endpoints for children and young people (0–20 years) with chronic conditions. Methods This study used a Delphi technique. Based on the number of relevant peer-reviewed publications, clinical academics were invited to participate in three survey rounds. Round one contained open-ended and multiple-choice questions eliciting general opinions on self-management. For round two, results were provided to the interdisciplinary expert panel as statements for rating their agreement using a 7-point Likert scale, with consensus predefined as moderately or extremely satisfied by > 70% of participants. Statements not meeting consensus were re-presented in round three, with group feedback incorporated. Finalised statements informed creation of the ‘Partners in Health: Self-Management Consensus List for Children and Young People’. Results Sixteen clinical academics participated: 12 completed round one; 14 completed round two; and 12 completed round three. Of 101 statements, 90 reached consensus, with statements separated into five developmentally appropriate groups. Statements covered broad self-management and self-management support domains including knowledge, involvement, monitoring/responding to symptoms, transition, impact, lifestyle, and support. Division of responsibility and autonomy were distinct themes. Conclusion and practice implications This research provides consensus-based guidance for clinicians providing paediatric self-management support. |
| Databáze: | OpenAIRE |
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