Caregiver Strategy Use to Promote Children's Home Participation After Pediatric Critical Illness
| Autor: | Jill I. Cameron, Karen Choong, Andrea Gurga, Mary A. Khetani, Jessica M. Jarvis, Heather Lim, Jan Willem Gorter |
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| Rok vydání: | 2019 |
| Předmět: |
Male
030506 rehabilitation medicine.medical_specialty Adolescent Critical Illness medicine.medical_treatment Physical Therapy Sports Therapy and Rehabilitation Qualitative property Environment Intensive Care Units Pediatric Severity of Illness Index 03 medical and health sciences 0302 clinical medicine International Classification of Functioning Disability and Health Intervention (counseling) Activities of Daily Living Humans Medicine Family Interpersonal Relations Prospective Studies Child Prospective cohort study Remedial education Physical Therapy Modalities Qualitative Research Pediatric intensive care unit Rehabilitation business.industry Medical record Infant Social Participation Caregivers Child Preschool Family medicine Female 0305 other medical science business 030217 neurology & neurosurgery |
| Zdroj: | Archives of Physical Medicine and Rehabilitation. 100:2144-2150 |
| ISSN: | 0003-9993 |
| Popis: | Objectives The primary objectives are to assess the most common type of caregiver strategy (remedial vs compensatory) reported for supporting their child’s home participation after critical illness and identify themes in compensatory strategies described, with a secondary objective to describe themes in strategy use as reported by caregivers of children who did and did not receive pediatric intensive care unit (PICU) rehabilitation services. Design Qualitative substudy of the Wee-Cover prospective cohort study. Setting Two PICU sites. Participants Wee-Cover enrolled caregivers (N=180) of children 1-17 years of age, who were admitted to a PICU for ≥48 hours. This study excluded participants missing relevant data (n=12). Intervention Not applicable. Main Outcome Measures Qualitative data were gathered from open-ended questions on strategies within the Participation and Environment Measure at PICU discharge and 3 and 6 months post-PICU discharge. Strategies were classified as remedial or compensatory pending their content fit with 1 of 5 environmental chapters in the International Classification of Functioning, Disability, and Health–Children and Youth Version. Data on PICU-based rehabilitation services were obtained prospectively from electronic medical records and dichotomized (yes or no). Results Most caregiver strategies were compensatory, with more than half (60%) of the strategies pertaining to fostering supportive relationships. In contrast, strategies addressing the child’s natural environment (12%), services (3%), and attitudes of others in the home (1%) were least commonly described. Similar themes were identified for caregivers whose children did and did not receive PICU rehabilitation services. Conclusions Caregivers identify a range of strategies to facilitate their child’s participation in home activities post-PICU discharge, but primarily report on strategies for addressing supports and relationships in the child’s home environment. Results highlight areas warranting caregiver education to support the child’s participation after critical illness. |
| Databáze: | OpenAIRE |
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