| Autor: |
Allison Tong, Braden Manns, Angela Yee Moon Wang, Brenda Hemmelgarn, David C. Wheeler, John Gill, Peter Tugwell, Robert Pecoits-Filho, Sally Crowe, Tess Harris, Wim Van Biesen, Wolfgang C. Winkelmayer, Adeera Levin, Aliza Thompson, Vlado Perkovic, Angela Ju, Talia Gutman, Amelie Bernier-Jean, Andrea K. Viecelli, Emma O’Lone, Jenny Shen, Michelle A. Josephson, Yeoungjee Cho, David W. Johnson, Bénédicte Sautenet, Marcello Tonelli, Jonathan C. Craig, Jonathan Craig, Angela Wang, David Wheeler, Roberto Pecoits-Filho, Wim van Biesen, Wolfgang Winkelmayer, Aditi Sinha, Albert Ong, Alexis Denny, Allison Dart, Allison Eddy, Amy Kelly, Andrea Viecelli, Andrew Davenport, Andrew Narva, Ankit Sharma, Anthony Warrens, Arlene Chapman, Armando Teixeira-Pinto, Ayano Kelly, Barbara Murphy, Benedicte Sautenet, Benita Padilla, Bernard Canaud, Brian Pullin, Brigitte Schiller, Bruce Robinson, Camilla Hanson, Carmel Hawley, Charlotte Logeman, Charmaine Lok, Christoph Wanner, Chuck Herzog, Claudia Rutherford, Curie Ahn, Daniel Sumpton, David Rosenbloom, David Harris, David Baron, David Johnson, David White, Debbie Gipson, Denis Fouque, Denise Eilers, Detlef Bockenhauer, Donal O'Donoghue, Dongping Chen, Dyke Dunning, Edwina Brown, Elena Bavlovlenkov, Elinor Mannon, Emilo Poggio, Emma O'Lone, Eric Chemla, Fabienne Dobbels, Faiez Zannad, Fergus Caskey, Francesca Tentori, Frank Hurst, Franz Schaefer, Germaine Wong, Gillian Brunier, Giovanni Strippoli, Gopala Rangan, Greg Knoll, Gregorio Obrador, Harold Feldman, Helen Coolican, Hui-Kim Yap, Jaap Groothoff, James Sloand, Jane Tan, Jayme Locke, Jeffrey Perl, Jeremy Chapman, Jie Dong, Jolanta Malyszko, Jonathan Fox, Juan Dapueto, Juliana Tze-Wah Kao, Kai Ming Chow, Karine Manera, Karolis Azukaitis, Kevan Polkinghorne, Kevin Fowler, Kim Linh Van, Klemens Budde, Krista Lentine, Krister Cromm, Lai-Seong Hooi, Laura James, Laura Dember, Li Zuo, Lionel Rostaing, Liz Lightstone, Lorna Marson, Lorraine Hamiwka, Mahesh Krishnan, Marinella Ruospo, Mark Unruh, Martin Wilkie, Martin Howell, Mary Amanda Dew, Meg Jardine, Melissa West, Michael Zappitelli, Michael Germain, Michelle Josephson, Mike Rocco, Myra Kleinpeter, Nichole Jefferson, Nick Webb, Nicole Evangelidis, Nieltje Gedney, Pam Duquette, Peter Kerr, Patrick Rossignol, Peter Reese, Peter J. Blankestijn, Prabir Roy-Chaudhury, Priti Patel, Quinetta Taylor, Rachel Perlman, Rainer Oberbauer, Rajnish Mehrotra, Raymond Vanholder, Richard Fluck, Richard McGee, Rob Quinn, Robert Lee, Ron Gansevoort, Ronald Perrone, Ronke Apata, Roslyn Mannon, Sajeda Youssouf, Sara Davison, Sarah Bernays, Sarala Naiker, Sharon Teo, Sheila Jowsey-Gregoire, Simon Carter, Stefano Stuard, Stephen Alexander, Stephen McDonald, Steve Chadban, Stuart Goldstein, Susan Furth, Susan Samuel, Tariq Shafi, Tazeen Jafar, Thomas Hiemstra, Tim Pruett, Timmy Lee, Tushar Vachharajani, Vanita Jassal, Vera Krane, Vicente Torres, Vivekanand Jha, Will Herrington, Yoonkyu Oh, York Pei, Zeeshan Butt |
| Přispěvatelé: |
MethodS in Patients-centered outcomes and HEalth ResEarch (SPHERE), Université de Tours (UT)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Nantes - UFR des Sciences Pharmaceutiques et Biologiques, Université de Nantes (UN)-Université de Nantes (UN), Paediatric Nephrology, APH - Methodology, AGEM - Inborn errors of metabolism, APH - Quality of Care, ARD - Amsterdam Reproduction and Development, Université de Tours-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Nantes - UFR des Sciences Pharmaceutiques et Biologiques |
| Jazyk: |
angličtina |
| Rok vydání: |
2018 |
| Předmět: |
|
| Zdroj: |
Kidney international, vol 94, iss 6
Kidney International
Kidney International, Nature Publishing Group, 2018, 94 (6), pp.1053-1068. ⟨10.1016/j.kint.2018.08.018⟩
Kidney international, 94(6), 1053-1068. Nature Publishing Group |
| ISSN: |
1053-1068
0085-2538
1523-1755 |
| DOI: |
10.1016/j.kint.2018.08.018⟩ |
| Popis: |
There are an estimated 14,000 randomized trials published in chronic kidney disease. The most frequently reported outcomes are biochemical endpoints, rather than clinical and patient-reported outcomes including cardiovascular disease, mortality, and quality of life. While many trials have focused on optimizing kidney health, the heterogeneity and uncertain relevance of outcomes reported across trials may limit their policy and practice impact. The international Standardized Outcomes in Nephrology (SONG) Initiative was formed to identify core outcomes that are critically important to patients and health professionals, to be reported consistently across trials. We convened a SONG Implementation Workshop to discuss the implementation of core outcomes. Eighty-two patients/caregivers and health professionals participated in plenary and breakout discussions. In this report, we summarize the findings of the workshop in two main themes: socializing the concept of core outcomes, and demonstrating feasibility and usability. We outline implementation strategies and pathways to be established through partnership with stakeholders, which may bolster acceptance and reporting of core outcomes in trials, and encourage their use by end-users such as guideline producers and policymakers to help improve patient-important outcomes. ispartof: pages:1053-1068 ispartof: Kidney Int vol:94 issue:6 pages:1053-1068 ispartof: location:United States status: published |
| Databáze: |
OpenAIRE |
| Externí odkaz: |
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