Self-investigation to explore the impact of juvenile arthritis on adolescent life
| Autor: | Hubert J. M. Hermans, Wietse Kuis, Coralie E. Fuchs, Stefan M. van Geelen, Gerben Sinnema |
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| Přispěvatelé: | Medical psychology |
| Jazyk: | angličtina |
| Rok vydání: | 2008 |
| Předmět: |
Freedom
Self-Assessment Adolescent media_common.quotation_subject Emotions Happiness Psychology Adolescent Identity (social science) Arthritis Disease Personal Satisfaction Trust Developmental psychology Cost of Illness Sickness Impact Profile Surveys and Questionnaires Activities of Daily Living Adaptation Psychological medicine Juvenile Intrinsic motivation Humans Interpersonal Relations media_common Motivation Narration General Medicine medicine.disease Arthritis Juvenile Self Concept Test (assessment) Chronic disease Feeling Quality of Life Female Psychology Attitude to Health |
| Zdroj: | Fuchs, C E, Sinnema, G, van Geelen, S M, Hermans, H J M & Kuis, W 2008, ' Self-investigation to explore the impact of juvenile arthritis on adolescent life : A case-study ', Patient Education and Counseling, vol. 72, no. 1, pp. 163-167 . https://doi.org/10.1016/j.pec.2008.03.005 Patient Education and Counseling, 72(1), 163-167. Elsevier Ireland Ltd |
| ISSN: | 0738-3991 |
| DOI: | 10.1016/j.pec.2008.03.005 |
| Popis: | Objective To gain insight into the personal experience and feelings of an adolescent with a chronic disease. Methods We report on the application of the self-confrontation method (SCM), illustrated by a case-example of an adolescent with juvenile idiopathic arthritis. Results Although taken at face value she was not impeded by the arthritis, through self-assessment with the SCM this adolescent acknowledged and addressed the emotional struggle to keep the arthritis secret and to constantly test the physical limits of her body. After the process of self-reflection, the adolescent showed a better integration of her arthritis experiences into her life story. Conclusion With the SCM the adolescent could explore her own functioning and well-being on a manifest , as well as on an emotional and motivational level. Practice implications In future research, by studying the self-investigations of a group of adolescents with chronic diseases, common risk factors for the development of a stable identity during adolescence might be identified. In clinical care, the SCM promotes self-knowledge, allowing for an intrinsic motivation to deal with the emotional impact of the disease. |
| Databáze: | OpenAIRE |
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