Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project
| Autor: | Teal W. Benevides, Lindsey Nebeker, Stephen M. Shore, Becca Lory Hector, Dena L. Gassner, Barb Cook, Karl Wittig, Brigid Rankowski, May Lynn Andresen, Reid Caplan, Lisa Morgan, Kate Palmer, Patricia Duncan, Yenn Purkis, Steven S. Coughlin, Alex Plank |
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| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Research design
priorities Adult Male 030506 rehabilitation autistic Autism Spectrum Disorder autism 03 medical and health sciences Intervention (counseling) Surveys and Questionnaires Developmental and Educational Psychology medicine Humans 0501 psychology and cognitive sciences Active listening Action research Autistic Disorder stakeholder participatory action research Health Priorities 05 social sciences Stakeholder mental health outcomes Mental Health Across the Lifespan medicine.disease Mental health Mental Health Anxiety Autism Female medicine.symptom 0305 other medical science Psychology 050104 developmental & child psychology Clinical psychology |
| Zdroj: | Autism |
| ISSN: | 1461-7005 1362-3613 |
| Popis: | Autistic adults are significantly more likely to experience co-occurring mental health conditions such as depression and anxiety. Although intervention studies are beginning to be implemented with autistic adults to address mental health outcomes, little is known about what research autistic adults feel is needed, or what mental health outcomes are of value to them. The purpose of this article is to describe a project that involved more than 350 autistic adults and other stakeholders as coproducers of research priorities on mental health. Through a variety of methods including a large online survey, two large stakeholder meetings, and three face-to-face focus groups, the project team identified five top priorities for mental health research which should be incorporated by researchers and practitioners in their work with autistic adults. These included research to inform trauma-informed care approaches; societal approaches for inclusion and acceptance of autistic individuals; community-available approaches for self-management of mental health; evaluation of adverse mental health outcomes of existing interventions; and improvements in measurement of quality of life, social well-being, and other preferred outcomes in autistic adults. Lay Abstract Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults. |
| Databáze: | OpenAIRE |
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