Consensus-Driven Development of a Terminology for Biobanking, the Duke Experience
| Autor: | Mary-Beth Joshi, Anita Walden, Aenoch J Lynn, Helena J. Ellis |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
0301 basic medicine
Engineering Consensus Universities data elements Process (engineering) Interoperability Medicine (miscellaneous) interoperability General Biochemistry Genetics and Molecular Biology Terminology World Wide Web 03 medical and health sciences Terminology as Topic terminology Information system biorepository Biological Specimen Banks business.industry Information sharing Original Articles Cell Biology General Medicine Biobank Data science biobank Leadership 030104 developmental biology Biorepository Informatics standards business |
| Zdroj: | Biopreservation and Biobanking |
| ISSN: | 1947-5543 1947-5535 |
| DOI: | 10.1089/bio.2016.0092 |
| Popis: | Biobanking at Duke University has existed for decades and has grown over time in silos and based on specialized needs, as is true with most biomedical research centers. These silos developed informatics systems to support their own individual requirements, with no regard for semantic or syntactic interoperability. Duke undertook an initiative to implement an enterprise-wide biobanking information system to serve its many diverse biobanking entities. A significant part of this initiative was the development of a common terminology for use in the commercial software platform. Common terminology provides the foundation for interoperability across biobanks for data and information sharing. We engaged experts in research, informatics, and biobanking through a consensus-driven process to agree on 361 terms and their definitions that encompass the lifecycle of a biospecimen. Existing standards, common terms, and data elements from published articles provided a foundation on which to build the biobanking terminology; a broader set of stakeholders then provided additional input and feedback in a secondary vetting process. The resulting standardized biobanking terminology is now available for sharing with the biobanking community to serve as a foundation for other institutions who are considering a similar initiative. |
| Databáze: | OpenAIRE |
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