Utilization of alternative and augmentative communication resources by patients with amyotrophic lateral sclerosis
| Autor: | Samara Lamounier Santana Parreira, Kelly Cristina Borges Tacon, Micaele Kedma Ribeiro de Moraes, Lucimar Pinheiro Rosseto, Vagner Rogério dos Santos, Acary Souza Bulle Oliveira, Viviane Lemos Silva Fernandes, Francis Meire Fávero |
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| Rok vydání: | 2020 |
| Předmět: | |
| Zdroj: | Manual Therapy, Posturology & Rehabilitation Journal. :1-12 |
| ISSN: | 2236-5435 1677-5937 |
| DOI: | 10.17784/mtprehabjournal.2019.17.723 |
| Popis: | Introduction: Amyotrophic Lateral Sclerosis (ALS) is a multisystemic impairment disease, among them, the total loss of communicative abilities. Augmentative and Alternative Communication (CAA) seeks to provide effective communication through specific resources. Objective: To verify the influence of ALS on aspects of personal, social and environmental life in patients who use the CAA. Methods: This is a qualitative, exploratory, longitudinal research of a series of cases. The patients with ALS were invited to participate of an evaluation with a sociodemographic and semi-structured questionnaire. Each participant obtained a CAA resource offered by the present research and returned for a reevaluation. Results: The analysis based on the reports that emerged from the spontaneous comments and generated five categories (socialization, social attitudes, communication and rights, services, systems and policies, and family interaction). Conclusion: Even with the use of CAA, ELA generates negative impacts on socialization and social participation due to social and environmental factors. |
| Databáze: | OpenAIRE |
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