Three-year trajectories of global perceived quality of life for youth with chronic health conditions
| Autor: | Linda T. Miller, Megan Nichols, F. Virginia Wright, David J. DeWit, Janette McDougall |
|---|---|
| Rok vydání: | 2016 |
| Předmět: |
Male
Quality of life Chronic conditions medicine.medical_specialty Longitudinal study Youth Adolescent 050109 social psychology Article Developmental psychology Cohort Studies 03 medical and health sciences Perceived quality 0302 clinical medicine Quality of life (healthcare) Occupational Therapy Sickness Impact Profile medicine Humans 0501 psychology and cognitive sciences Longitudinal Studies Prospective Studies Child Self report Change trajectories Quality of Life Research 4. Education Public health 05 social sciences Perspective (graphical) Public Health Environmental and Occupational Health Parent reports Latent class growth analysis Chronic Disease Female Psychology Self-report 030217 neurology & neurosurgery |
| Zdroj: | Occupational Therapy Publications Quality of Life Research |
| ISSN: | 1573-2649 0962-9343 |
| DOI: | 10.1007/s11136-016-1353-z |
| Popis: | Purpose Objectives of this longitudinal study were to examine 3-year trajectories of global perceived quality of life (QOL) for youth with chronic health conditions, as obtained from youth and parent reports, and to identify personal and environmental factors associated with the trajectory groups for each perspective. Methods Youth with various chronic conditions aged 11–17 years and one of their parents were recruited from eight children’s treatment centers. Latent class growth analysis was used to investigate perceived QOL trajectories (separately for youth and parent perspectives) over a 3-year period (four data collection time points spaced 12 months apart). Multinomial logistic regression was employed to identify factors associated with these trajectories. Results A total of 439 youth and one of their parents participated at baseline, and 302 (69 %) of those youth/parent dyads completed all four data collection time points. Two QOL trajectories were identified for the youth analysis: ‘high and stable’ (85.7 %) and ‘moderate/low and stable’ (14.3 %), while three trajectories were found for the parent analysis: ‘high and stable’ (35.7 %), ‘moderate and stable’ (46.6 %), and ‘moderate/low and stable’ (17.7 %). Relative to the ‘high and stable’ groups, youth with more reported pain/other physical symptoms, emotional symptoms, and home/community barriers were more likely to be in the ‘moderate and stable’ or ‘moderate/low and stable’ groups. Also, youth with higher reported self-determination, spirituality, family social support, family functioning, school productivity/engagement, and school belongingness/safety were less likely to be in the ‘moderate and stable’ or ‘moderate/low and stable’ groups, compared to the ‘high and stable’ groups. Conclusion Findings suggest that youth with chronic conditions experience stable global perceived QOL across time, but that some individuals maintain stability at moderate to moderate/low levels which is related to ongoing personal and environmental influences. Potential benefits of universal strategies and programs to safeguard resilience for all youth and targeted interventions to optimize certain youths’ global perceived QOL are indicated. Electronic supplementary material The online version of this article (doi:10.1007/s11136-016-1353-z) contains supplementary material, which is available to authorized users. |
| Databáze: | OpenAIRE |
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