Quality of life in children suffering from juvenile idiopathic arthritis-associated uveitis
| Autor: | Mario Sestan, Maja Sedmak, Nenad Vukojevic, Marijan Frković, Kristina Potočki, Sanja Perić, Nastasia Kifer, Marija Jelušić, Marina Grubić, Danica Grguric |
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| Rok vydání: | 2020 |
| Předmět: |
musculoskeletal diseases
Male Parents medicine.medical_specialty genetic structures Adolescent Health-related quality of life Juvenile idiopathic arthritis Patient health questionnaire Uveitis Immunology Vision Disorders Arthritis Affect (psychology) Cataract Macular Edema 03 medical and health sciences 0302 clinical medicine Rheumatology Quality of life Internal medicine Immunology and Allergy Medicine Juvenile Humans 030212 general & internal medicine Functional ability skin and connective tissue diseases Child 030203 arthritis & rheumatology business.industry Glaucoma medicine.disease Arthritis Juvenile Patient Health Questionnaire Antirheumatic Agents Child Preschool Physical therapy Quality of Life Female Self Report business |
| Zdroj: | Rheumatology international. 40(7) |
| ISSN: | 1437-160X |
| Popis: | Uveitis (JIA-U), the most common extra- articular manifestation in juvenile idiopathic arthritis (JIA), may cause severe impairment of vision in children and affect their quality of life (QoL). Considering the lack of uveitis- related QoL assessment questionnaire, and multidimensional nature of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR), commonly used for monitoring and assessing the health status of children with JIA, we performed a cross-sectional study to investigate the potential of the JAMAR in estimation of QoL in children suffering from JIA- U. The study included 42 children with JIA, 21 of whom had JIA-U. Both children and their parents completed the JAMAR. We compared two groups of children (JIA-U and JIA without uveitis) and their parents against five extracted questionnaires items (QoL, functional ability, pain level, disease activity estimation, and current emotional state of the child) using the independent-samples t test to verify the differences and the Pearson correlation coefficient to measure the strength of a linear association between variables. No significant statistical difference in any of the examined variables was found between the two groups of children. In the groups of parents, current emotional state of children with JIA-U was assessed to be significantly worse (t = 2.05, p < 0.05) and the overall level of functioning significantly lower (t = 2.03, p < 0.05) than children without uveitis. Our results suggest the need for adding the uveitis-specific questionnaires items to JAMAR to improve its sensitivity and specificity in the assessment of QoL in children suffering from JIA-U, as well as designing a second assessment tool such as uveitis-specific questionnaires. |
| Databáze: | OpenAIRE |
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