Decision Making Regarding the Place of End-of-Life Cancer Care: The Burden on Bereaved Families and Related Factors
| Autor: | Maho Aoyama, Miwa Aoki, Eiko Masutani, Yoshiyuki Kizawa, Yasuo Shima, Megumi Kishino, Satoru Tsuneto, Harue Arao, Mitsunori Miyashita, Sena Yamamoto, Tatsuya Morita |
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| Rok vydání: | 2017 |
| Předmět: |
Male
medicine.medical_specialty Palliative care media_common.quotation_subject Clinical Decision-Making Context (language use) Bereaved family Terminal cancer 03 medical and health sciences 0302 clinical medicine Cost of Illness Japan Nursing Neoplasms medicine Humans Family 030212 general & internal medicine General Nursing Depression (differential diagnoses) media_common Related factors Terminal Care Depression business.industry Incidence Palliative Care Cancer Middle Aged medicine.disease humanities Cross-Sectional Studies Anesthesiology and Pain Medicine Caregivers Health Care Surveys 030220 oncology & carcinogenesis Family medicine Female Grief Neurology (clinical) business Bereavement |
| Zdroj: | Journal of Pain and Symptom Management. 53:862-870 |
| ISSN: | 0885-3924 |
| Popis: | Decision making regarding the place of end-of-life (EOL) care is an important issue for patients with terminal cancer and their families. It often requires surrogate decision making, which can be a burden on families.To explore the burden on the family of patients dying from cancer related to the decisions they made about the place of EOL care and investigate the factors affecting this burden.This was a cross-sectional mail survey using a self-administered questionnaire. Participants were 700 bereaved family members of patients with cancer from 133 palliative care units in Japan. The questionnaire covered decisional burdens, depression, grief, and the decision-making process.Participants experienced emotional pressure as the highest burden. Participants with a high decisional burden reported significantly higher scores for depression and grief (both P 0.001). Multiple regression analyses revealed that higher burden was associated with selecting a place of EOL care that differed from that desired by participants (P 0.001) and patients (P = 0.034), decision making without knowing the patient's wishes and values (P 0.001) and without participants sharing their wishes and values with the patient's doctors and/or nurses (P = 0.022), and making the decision because of a due date for discharge from a former facility or hospital (P = 0.005).Decision making regarding the place of EOL care was recalled as burdensome for family decision makers. An early decision-making process that incorporates sharing patients' and family members' values that are relevant to the desired place of EOL care is important. |
| Databáze: | OpenAIRE |
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