Participation in research improves overall patient management: insights from the Global Rheumatic Heart Disease registry (REMEDY)

Autor: EA, Prendergast, S, Perkins, A, Joachim, LJ, Zühlke, ME, Engel, V, Francis, B, Mayosi, B, Cupido, M, Al Kebsi, F, Bode-Thomas, A, Damasceno, A, Abul Fadl, A, El Sayed, A, Ibrahim, B, Gitura, N, Kennedy, J, Mucumbitsi, AM, Adeoye, J, Musuku, E, Okello, T, Olunuga, S, Sheta, BM, Mayosi
Rok vydání: 2018
Předmět:
Health Knowledge
Attitudes
Practice
medicine.medical_specialty
Heart disease
Attitude of Health Personnel
MEDLINE
Qualitative property
030204 cardiovascular system & hematology
Interviews as Topic
03 medical and health sciences
0302 clinical medicine
INR self-monitoring
Health care
medicine
Humans
low- and middle-income countries
Registries
030212 general & internal medicine
Practice Patterns
Physicians'
implementation
Quality Indicators
Health Care
Delivery of Health Care
Integrated
business.industry
Cardiovascular Topics
Public health
Rheumatic Heart Disease
General Medicine
medicine.disease
Quality Improvement
Research Personnel
Clinical research
clinical research
Research Design
REMEDY study
Health Care Surveys
Family medicine
Observational study
Clinical Competence
Cardiology and Cardiovascular Medicine
business
Zdroj: Cardiovascular Journal of Africa
ISSN: 1680-0745
1995-1892
Popis: Summary Background Rheumatic heart disease (RHD) is a major public health problem in low– and middle–income countries (LMICs), with a paucity of high–quality trial data to improve patient outcomes. Investigators felt that involvement in a recent large, observational RHD study impacted positively on their practice, but this was poorly defined. Aim The purpose of this study was to document the experience of investigators and research team members from LMICs who participated in a prospective, multi–centre study, the global Rheumatic Heart Disease Registry (REMEDY), conducted in 25 centres in 14 countries from 2010 to 2012. Methods We conducted an online survey of site personnel to identify and quantify their experiences. Telephone interviews were conducted with a subset of respondents to gather additional qualitative data. We asked about their experiences, positive and negative, and about any changes in RHD management practices resulting from their participation in REMEDY as a registry site. Results The majority of respondents in both the survey and telephone interviews indicated that participation as a registry site improved their management of RHD patients. Administrative changes included increased attention to follow–up appointments and details in patient records. Clinical changes included increased use of penicillin prophylaxis, and more frequent INR monitoring and contraceptive counselling. Conclusions Our study demonstrates that participation in clinical research on RHD can have a positive impact on patient management. Furthermore, REMEDY has led to increased patient awareness and improved healthcare workers’ knowledge and efficiency in caring for RHD patients.
Databáze: OpenAIRE
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