Care seeking and treatment for hepatitis C infection in Rwanda: A qualitative study of patient experiences
Autor: | Neil Gupta, Jules Kabahizi, Emmanuel Musabeyezu, Alain Mukuralinda, Claude Mambo Muvunyi, Sabin Nsanzimana, Fabienne Shumbusho, Constance Mukabatsinda, Aimable Mbituyumuremi, Jennifer Ilo Van Nuil, Fredrick Kateera, Joia Mukerjee |
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Rok vydání: | 2020 |
Předmět: |
medicine.medical_specialty
Context (language use) Antiviral Agents 03 medical and health sciences 0302 clinical medicine Agency (sociology) medicine Humans 030212 general & internal medicine Qualitative Research 030505 public health Public health Rwanda Public Health Environmental and Occupational Health Hepatitis C Proactivity Patient Acceptance of Health Care medicine.disease Patient Outcome Assessment Clinical trial Vaccination Family medicine 0305 other medical science Psychology Qualitative research |
Zdroj: | BASE-Bielefeld Academic Search Engine |
ISSN: | 1744-1706 1744-1692 |
Popis: | An estimated 71 million people live with hepatitis C virus (HCV) and without an effective vaccination, control efforts depend entirely on prevention, early diagnosis, and treatment with direct acting antiviral medication. The experiences of accessing care and treatment, as well as how HCV is locally perceived, are context specific and require an understanding of local epidemics. The objectives of this study were to explore the experiences and demand-side barriers for people with chronic HCV infection, as well as describe the social and cultural landscapes in which they experienced, managed, and perceived HCV in Rwanda. Eleven participants provided consent to participate and all completed two semi-structured interviews during treatment within a clinical trial. We identified four themes: (1) diagnosis and use of traditional medicine, (2) access and financial barriers, (3) complex social networks (4) proactivity in care-seeking. Results demonstrate the complex ways in which Rwandans understand HCV, utilise parallel health systems, activate social networks, and the importance of active agency in the opportunities and outcomes for their own health in the context of an early response to a major epidemic. Without recognising communities' understanding and expectations, it is impossible to build a sustainable and successful public health response to HCV. |
Databáze: | OpenAIRE |
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