Mediators of Atherosclerosis in South Asians Living in America: Use of Web-Based Methods for Follow-Up and Collection of Patient-Reported Outcome Measures
| Autor: | Namratha R Kandula, Ankita Puri-Taneja, David E Victorson, Swapna S Dave, Alka M Kanaya, Mark D Huffman |
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| Rok vydání: | 2016 |
| Předmět: |
Gerontology
020205 medical informatics Electronic data capture education 02 engineering and technology 03 medical and health sciences 0302 clinical medicine Email address cohort studies Completion rate 0202 electrical engineering electronic engineering information engineering South Asian Web application Medicine 030212 general & internal medicine Original Paper Internet business.industry Incidence (epidemiology) General Medicine cardiovascular diseases 3. Good health Cohort Patient-reported outcome business Cohort study |
| Zdroj: | JMIR Research Protocols |
| ISSN: | 1929-0748 |
| DOI: | 10.2196/resprot.5448 |
| Popis: | Background: A key challenge for longitudinal cohort studies is follow-up and retention of study participants. Participant follow-up in longitudinal cohort studies is costly and time-consuming for research staff and participants. Objective: This study determined the feasibility and costs of using Web-based technologies for follow-up and collection of patient-reported outcomes in the Mediators of Atherosclerosis in South Asians Living in America (MASALA) study. Methods: The MASALA study is a community-based cohort of 906 South Asians in the United States. Since the baseline in-person visits (2010-2013), a yearly telephone follow-up survey was used to assess participants’ health status and incidence of cardiovascular disease. A Web-based version of the follow-up survey was developed using the REDCap (Research Electronic Data Capture) Web app. Participants from the Chicago field center who were due for their annual follow-up and who had a valid email address were sent an email link to a secure online portal where they could complete the survey. Telephone follow-up was used with nonresponders. Results: A link to the Web survey was emailed to 285 participants (February to October 2014) and the overall completion rate was 47.7% (136/285). One-third of participants who were unresponsive (n=36) to annual telephone follow-up completed the Web survey. Web responders were younger, more likely to be married, and to have higher education and income compared (P |
| Databáze: | OpenAIRE |
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