Needs, priorities, and attitudes of individuals with spinal cord injury toward nerve stimulation devices for bladder and bowel function: a survey

Autor: Karl B. Thor, Jiayang Sun, Anita Kaiser, Abby Bolon, Jennifer French, Dennis Bourbeau, Tara Jeji, Roman Kouznetsov, Bill Fertig, Jane Wierbicky, Wei Dai, Graham H. Creasey, Bruno Gallo Santacruz, Alexander G. Rabchevsky, Tracey Wheeler
Rok vydání: 2019
Předmět:
Zdroj: Spinal cord
ISSN: 1476-5624
Popis: Study Design: Survey. Objectives: To investigate the needs and priorities of people with spinal cord injury for managing neurogenic bladder and bowel function and to determine their willingness to adopt neuromodulation interventions for these functions. Methods: Anonymous online survey. It was advertised by word-of-mouth by community influencers and social media, and by advertisement in newsletters of advocacy groups. Results: Responses from 370 individuals (27% female, 73% male) were included. Bladder emptying without catheters was the top priority for restoring bladder function, and maintaining fecal continence was the top priority for restoring bowel function. The biggest concerns regarding external stimulation systems were wearing a device with wires connecting to electrodes on the skin and having to don and doff the system daily as needed. The biggest concerns for implanted systems were the chances of experiencing problems with the implant that required a revision surgery or surgical removal of the whole system. Respondents were willing to accept an external (61%) or implanted (41%) device to achieve improved bladder or bowel function. Conclusions: Bladder and bowel dysfunction remain important unmet challenges for individuals living with SCI who answered our survey. These individuals are willing to accept some potential risks of nerve stimulation approaches given potential benefits. Additional consumer input is critical for guiding both research and translation to clinical use and personalized medicine.
Databáze: OpenAIRE