From Rare to Neglected Diseases: A Sustainable and Inclusive Healthcare Perspective for Reframing the Orphan Drugs Issue
| Autor: | Mattia Lettieri, Sergio Barile, Francesco Caputo, Stefania Zanda, Marialuisa Saviano |
|---|---|
| Přispěvatelé: | Saviano, Marialuisa, Barile, Sergio, Caputo, Francesco, Zanda, Stefania, Lettieri, Mattia |
| Jazyk: | angličtina |
| Rok vydání: | 2019 |
| Předmět: |
endocrine system
healthcare orphan drugs rare diseases neglected diseases sustainable and inclusive development Geography Planning and Development lcsh:TJ807-830 lcsh:Renewable energy sources rare disease Management Monitoring Policy and Law Orphan drug 03 medical and health sciences 0302 clinical medicine Political science 0502 economics and business Health care 030212 general & internal medicine neglected disease lcsh:Environmental sciences social equality sustainability government regulation Sustainable development lcsh:GE1-350 Renewable Energy Sustainability and the Environment business.industry lcsh:Environmental effects of industries and plants 05 social sciences Perspective (graphical) Cognitive reframing Public relations orphan drug lcsh:TD194-195 Work (electrical) Sustainability business 050203 business & management Social equality |
| Zdroj: | Sustainability; Volume 11; Issue 5; Pages: 1289 Sustainability, Vol 11, Iss 5, p 1289 (2019) |
| ISSN: | 2071-1050 |
| DOI: | 10.3390/su11051289 |
| Popis: | This work is about how healthcare issues can be reframed from a sustainable and inclusive development perspective. Focusing on the case of orphan drugs and rare diseases, first, a country-based review of the main regulatory approaches to orphan drugs is conducted; then, the main contributions of the literature are reviewed to identify dominant views and the way the problem is more commonly framed. The main findings reveal that the dominant regulatory approaches and theoretical interpretations of the problem are mainly based on economic considerations. However, this does not seem to have led to very satisfactory results. Reflecting upon what the sustainability perspective can highlight with reference to healthcare, substantial connections between the orphan drugs issue and that of neglected diseases are highlighted. These connections suggest reframing the orphan drugs issue as a social equality and inclusiveness problem, hence the need to adopt a sustainable and inclusive development perspective. As a key sustainable development goal (SGD) to be shared by all nations, healthcare should always be approached by putting the principles of sustainable and inclusive development at the core of policy makers’ regulatory choices. Accordingly, we think that the orphan drugs issue, like that of neglected diseases, could be better faced by adopting a social equality and inclusiveness perspective. |
| Databáze: | OpenAIRE |
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