A pilot trial of telemedicine-assisted, integrated care for patients with advanced amyotrophic lateral sclerosis and their caregivers
| Autor: | Laura Comini, Debora Trainini, Marta Tentorio, Domenico Fiorenza, Roberta Morini, Giuliano Assoni, Simonetta Scalvini, Gisella Bruletti, Michele Vitacca |
|---|---|
| Rok vydání: | 2010 |
| Předmět: |
Male
medicine.medical_specialty Telemedicine Activities of daily living MEDLINE Pilot Projects Health Informatics Disease Patient satisfaction Quality of life Surveys and Questionnaires Activities of Daily Living Humans Medicine Amyotrophic lateral sclerosis Aged business.industry Remote Consultation Amyotrophic Lateral Sclerosis Middle Aged medicine.disease Home Care Services Integrated care Caregivers Italy Patient Satisfaction Quality of Life Physical therapy Female business |
| Zdroj: | Journal of Telemedicine and Telecare. 16:83-88 |
| ISSN: | 1758-1109 1357-633X |
| DOI: | 10.1258/jtt.2009.090604 |
| Popis: | Patients with amyotrophic lateral sclerosis (ALS) need a care programme as the disease progresses. We used telemedicine-assisted integrated care (TAIC) in 40 patients with ALS, for a mean duration of 8.6 months (range 1–12). A nurse-tutor played the key role, supported by respiratory physicians, neurologists and psychologists. Each patient used a portable pulse oximeter during the daily telephone contacts to assess clinical/oxygen variations. Patients also completed a satisfaction questionnaire. During the study period, each patient used TAIC at least five times per month. There were 1907 scheduled telephone calls (86% of the total) and 317 unscheduled calls. Of the unscheduled calls, 84% were managed by the nurse-tutor and only 16% of them required specialist intervention. The most common item was the ALS clinical interview (58%), followed by the description of acute symptoms, cough ability and oxygenation. TAIC staff recommended 4 out of 12 emergency hospital admissions (33%) and 77% of the other hospitalizations. Patients and caregivers were extremely satisfied (79%) with the nurse assistance provided and the patients' confidence in handling their disease improved in 71% of the cases. TAIC provides a nurse-centred, home-monitoring programme that can be a useful way of following up ALS patients. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|