What is the impact of giant cell arteritis on patients' lives? A UK qualitative study
| Autor: | Sarah L. Mackie, Jane C Richardson, Toby Helliwell, James A. Prior, Jennifer Liddle, Christian D Mallen, Roisin Bartlam |
|---|---|
| Rok vydání: | 2017 |
| Předmět: |
Gerontology
Male medicine.medical_specialty Giant Cell Arteritis Pain Disease Anxiety Temporal Arteritis Patient Experience Interviews as Topic 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Rheumatology Patient experience medicine Humans 030212 general & internal medicine Everyday life skin and connective tissue diseases Glucocorticoids Fatigue Qualitative Research Aged 030203 arthritis & rheumatology Aged 80 and over business.industry Research General Medicine Middle Aged medicine.disease RC666 Surgery Giant cell arteritis Quality of Life Female medicine.symptom Thematic analysis business Everyday Life Qualitative research |
| Zdroj: | BMJ Open |
| ISSN: | 2044-6055 |
| Popis: | ObjectivesClinical management of giant cell arteritis (GCA) involves balancing the risks and burdens arising from the disease with those arising from treatment, but there is little research on the nature of those burdens. We aimed to explore the impact of giant cell arteritis (GCA) and its treatment on patients’ lives.MethodsUK patients with GCA participated in semi-structured telephone interviews. Inductive thematic analysis was employed.Results24 participants were recruited (age: 65–92 years, time since diagnosis: 2 months to >6 years). The overarching themes from analysis were: ongoing symptoms of the disease and its treatment; and ‘life-changing’ impacts. The overall impact of GCA on patients’ lives arose from a changing combination of symptoms, side effects, adaptations to everyday life and impacts on sense of normality. Important factors contributing to loss of normality were glucocorticoid-related treatment burdens and fear about possible future loss of vision.ConclusionsThe impact of GCA in patients’ everyday lives can be substantial, multifaceted and ongoing despite apparent control of disease activity. The findings of this study will help doctors better understand patient priorities, legitimise patients’ experiences of GCA and work with patients to set realistic treatment goals and plan adaptations to their everyday lives. |
| Databáze: | OpenAIRE |
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