A Qualitative Study of Factors Influencing Decision-Making after Prenatal Diagnosis of down Syndrome
| Autor: | Amy R. Reed, Kathryn L. Berrier |
|---|---|
| Rok vydání: | 2016 |
| Předmět: |
Adult
Male medicine.medical_specialty Down syndrome Genetic counseling Decision Making Prenatal diagnosis Affect (psychology) Developmental psychology 03 medical and health sciences 0302 clinical medicine Pregnancy Prenatal Diagnosis medicine Humans Genetics (clinical) Qualitative Research 0303 health sciences business.industry Public health 030305 genetics & heredity Cognition Middle Aged medicine.disease 030220 oncology & carcinogenesis Female Down Syndrome business Qualitative research |
| Zdroj: | Journal of genetic counseling. 26(4) |
| ISSN: | 1573-3599 |
| Popis: | Previous research has identified twenty-six factors that may affect pregnancy management decisions following prenatal diagnosis of DS; however, there is no consensus about the relative importance or effects of these factors. In order to better understand patient decision-making, we conducted expansive cognitive interviews with nine former patients who received a prenatal diagnosis of DS. Our results suggest that patients attached unique meanings to factors influencing decision-making regardless of the pregnancy outcome. Nineteen of the twenty-six factors previously studied and four novel factors (rationale for testing, information quality, pregnancy experience, and perception of parenting abilities and goals) were found to be important to decision-making. We argue that qualitative studies can help characterize the complexity of decision-making following prenatal diagnosis of DS. |
| Databáze: | OpenAIRE |
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