Understanding life experiences of people affected by Crohn's disease in Spain. A phenomenological approach
| Autor: | Miguel Richart-Martínez, Manuel Lillo-Crespo, Sofia Garcia-Sanjuan, Ángela Sanjuán Quiles |
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| Přispěvatelé: | Universidad de Alicante. Departamento de Enfermería, Calidad de Vida, Bienestar Psicológico y Salud, Enfermería y Cultura de los Cuidados (EYCC), Salud Pública |
| Rok vydání: | 2018 |
| Předmět: |
Adult
Male Crohn’s disease Psychotherapist Adolescent nurse Life Change Events Young Adult 03 medical and health sciences 0302 clinical medicine Crohn Disease Adaptation Psychological Humans Medicine Qualitative Research Aged Aged 80 and over 030504 nursing business.industry life experience Public Health Environmental and Occupational Health Middle Aged social support Crohn's disease Spain Chronic Disease Quality of Life phenomenology Female 030211 gastroenterology & hepatology Enfermería 0305 other medical science business Phenomenology (psychology) |
| Zdroj: | SCAND J CARING SCI r-ISABIAL. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica y Sanitaria de Alicante Consejo Superior de Investigaciones Científicas (CSIC) RUA. Repositorio Institucional de la Universidad de Alicante Universidad de Alicante (UA) |
| ISSN: | 1471-6712 |
| Popis: | Background and objectives: People affected by Crohn's disease must adapt their lives to their new chronic condition, and therefore, understanding such experience can be helpful in planning effective interventions for the affected ones. The aim of this study was to gain an insight into such experience and how they adapted in different areas of their lives, particularly in a family-centred culture such as the Spanish one. Method: A descriptive phenomenological study was conducted through in-depth interviews to 19 people diagnosed of Crohn's disease in the province of Alicante (Spain). Once the interviews were transcribed, data were analysed using Colaizzi's seven-step method. Results: Five emergent themes were identified: self-protection against the unknown cause; self-training; learning to live with Crohn's disease; perceived losses associated to Crohn's disease; and relationship with others. The results portrayed a chronically ill patient who is unconscious about the chronicity and consequently must develop strategies to keep living a similar life like the one lived before. Conclusions: This study revealed that people affected by Crohn's disease struggle with the fact of being a chronic patient with uncertainty about the illness and need to learn living with a chronic condition that limits their daily lives. Furthermore, the lack of Crohn's disease a professional in charge of these people's Cares such as the specific nursing role existing in other countries support in the Spanish Health System determines the loneliness those diagnosed experience to cope with the new situation. This study was funded by project ‘Diseño de una vía clínica de patologías crónicas como la hipertensión arterial y la enfermedad de Crohn. Orientación a la gestión de procesos’ (704753085-53085-45-514) integrated into the State plan I+D+I 2013-2016 Ministerio de Economía y Competitividad orientada a los Retos de la Sociedad and cofunded by ISCIII-Subdirección General de Evaluación y Fomento de la investigación el Fondo Europeo de Desarrollo Regional (FEDER). |
| Databáze: | OpenAIRE |
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