Internalized stigma in Hidradenitis Suppurativa; A multicenter cross-sectional study

Autor: Asli Bilgic, Bilge Fettahlıoglu Karaman, Duriye Deniz Demirseren, Levent Cınar, Nida Kaçar, Aylin Turel Ermertcan, Emel Bulbul Baskan, Münevver Güven, Serkan Yazici, Tuğba Özkök Akbulut, Derya Ucmak, Arzu Ataseven, Selami Aykut Temiz, Burhan Engin, Aysun Şikar Aktürk, Hayriye Sarıcaoğlu, Muge Guler Ozden, Hilal Ozdemir, Kifayet MAMMADLI, Koray Durmaz, Fatmagül Gülbaşaran, Fadime Kılınc, Hatice Kaya Özden, Meli̇s Gönülal, Didem Didar Balci, Bengü Çevirgen Cemil, Sezgi Sarikaya Solak, Leyla Baykal Selcuk, Goknur Ozaydin Yavuz, İbrahim Halil Yavuz, Levent Donmez, Erkan Alpsoy
Rok vydání: 2023
Předmět:
Zdroj: Dermatology.
ISSN: 1421-9832
1018-8665
Popis: Background: Hidradenitis suppurativa (HS) causes significant physical, social, and psychological burdens. Internalized stigma, acceptance of negative attitudes and stereotypes of society regarding a person's illness, has not been studied previously in HS. Objectives: The objective of this study was to investigate the internalized stigma state of HS patients and identify the factors affecting it. Methods: This multicenter, prospective, cross-sectional study included 731 patients. Internalized Stigma Scale (ISS), Hurley staging, Physician Global Assessment, Dermatology Life Quality Index (DLQI), Skindex-16, Beck Depression Inventory-II (BDI-II), and Visual Analog Scale (VAS)-pain score were used in the study. Results: The mean ISS value (57.50 +/- 16.90) was comparable to the mean ISS values of studies in visible dermatological and various psychiatric diseases. A significant correlation was found between the mean values of ISS and all disease activity scores, quality of life measures, BDI-II, and VAS-pain scores. Obesity, family history, low education and income level, vulva/scrotum involvement and being actively treated are significant and independent predictive factors for high internalized stigma in multivariate analysis. Conclusions: HS patients internalize society's negative judgements, which may create a profound negative effect on access to health care. Therefore, in addition to suppressing disease activity, addressing internalized stigma is fundamental for improving health care quality.
Databáze: OpenAIRE
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