Health-related quality of life of perinatally HIV-infected young people: a longitudinal study
| Autor: | Dasja Pajkrt, Kim J. Oostrom, M. Van den Hof, A. M. ter Haar, Henriette J. Scherpbier, Lotte Haverman |
|---|---|
| Přispěvatelé: | Paediatric Infectious Diseases / Rheumatology / Immunology, AII - Amsterdam institute for Infection and Immunity, Child and Adolescent Psychiatry & Psychosocial Care, APH - Personalized Medicine, APH - Quality of Care, ARD - Amsterdam Reproduction and Development, APH - Mental Health, APH - Methodology, AII - Infectious diseases, APH - Societal Participation & Health, APH - Aging & Later Life |
| Rok vydání: | 2021 |
| Předmět: |
Adult
Change over time Gerontology Longitudinal study Health (social science) Adolescent Social Psychology Norm (group) HIV Infections Cohort Studies Young Adult 03 medical and health sciences 0302 clinical medicine children Quality of life Hiv infected Humans Medicine adolescents Longitudinal Studies 030212 general & internal medicine Effects of sleep deprivation on cognitive performance Child Perinatal HIV infection Health related quality of life 030505 public health business.industry Public Health Environmental and Occupational Health health-related Quality of life Infectious Disease Transmission Vertical humanities Cohort Quality of Life 0305 other medical science business |
| Zdroj: | AIDS care, 34(2), 263-271. Routledge |
| ISSN: | 1360-0451 0954-0121 |
| Popis: | Young people perinatally infected with HIV (pHIV) are at risk of a lowered health-related quality of life (HRQOL). Previous evaluation of the NeurOlogical, VIsual and Cognitive performance in HIV-infected Children (NOVICE)-cohort showed no difference in HRQOL between pHIV and matched HIV-uninfected controls (HIV-), yet a higher percentage of pHIV had impaired HRQOL. The aim of this study is to compare the change over time in HRQOL of pHIV to HIV- over a 5-year period. We used the Pediatric Quality of Life Inventory (PedsQL)™ 4.0 to repeat HRQOL assessment. High PedsQL scores indicate good HRQOL. Fifteen/33 (45.5%) pHIV and 17/37 (45.9%) HIV- completed both assessments. At the first assessment, the mean age was 13.1 years (range 8.0–18.4). PHIV scored higher than HIV- on Emotional functioning and on Total scale score. After five years, the mean age was 17.6 years (range 12.1–22.8). PHIV scored higher than HIV- on all scales, except Social functioning. PHIV did not differ significantly from the Dutch norm on either time-point. LMEM showed no difference in change over time for any of the PedsQL scales. In this study, young people with pHIV receiving high-quality health care, including monitoring of HRQOL, remain to experience a good HRQOL. |
| Databáze: | OpenAIRE |
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