Stigma in Multiple Sclerosis: The Important Role of Sense of Coherence and Its Relation to Quality of Life
Autor: | Georg Schomerus, Matthias Grothe, Lydia Grothe, Judith Wingert, Sven Speerforck |
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Rok vydání: | 2021 |
Předmět: |
Mediation (statistics)
Multiple Sclerosis business.industry Sense of Coherence Psychological intervention Stigma (botany) Cognition Health psychology Cross-Sectional Studies Quality of life Surveys and Questionnaires Quality of Life Medicine Outpatient clinic Humans business Applied Psychology Depression (differential diagnoses) Fatigue Clinical psychology |
Zdroj: | International journal of behavioral medicine. 29(4) |
ISSN: | 1532-7558 |
Popis: | Background Anticipated and experienced stigma constitute important issues for patients with multiple sclerosis receiving adequate healthcare. Stigma is likely to be associated with lower quality of life in patients with multiple sclerosis, but the underlying mechanisms and contributing factors are unclear. Methods We conducted a cross-sectional survey among N = 101 patients with a diagnosis of multiple sclerosis in a German outpatient department. Patients completed questionnaires on enacted and self-stigma (SSCI-8), sense of coherence (SOC-L9) and quality of life (MusiQol). Age, sex, disease duration, disability or extent of limitations (EDSS), cognition (SDMT), depression (BDI-II) and fatigue (FSMC) were used as covariates in linear regression and mediation models. Results 57.3% of patients with MS reported having experienced stigmatization due to MS at least once. Fatigue (b = -0.199, p Conclusion Patients with multiple sclerosis are affected by stigma, which is associated with lower quality of life. Sense of coherence is a potentially important mediator of stigma and represents a promising target to refine existing stigma interventions and improve the quality of life in these patients. |
Databáze: | OpenAIRE |
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