Between Choice, Necessity, and Comfort: Deciding on Tube Feeding in the Acute Phase After a Severe Stroke
| Autor: | Marja F. I. A. Depla, A. Jeannette Pols, Marieke C. Visser, Leonie Dronkert, Isabel Frey, Marike E. De Boer, Cees M.P.M. Hertogh |
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| Přispěvatelé: | General practice, APH - Aging & Later Life, APH - Quality of Care, APH - Personalized Medicine, APH - Global Health |
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Palliative care
Decision Making Severe stroke Participant observation Phase (combat) 03 medical and health sciences Temporalities 0302 clinical medicine Enteral Nutrition end-of-life decision-making Nursing Humans 030212 general & internal medicine Tube (container) tube feeding Research Articles Anthropology Cultural Netherlands ethnographic research palliative care 030504 nursing Repertoire Public Health Environmental and Occupational Health qualitative research The Netherlands Stroke severe stroke 0305 other medical science Psychology Qualitative research |
| Zdroj: | Qualitative health research, 30(7), 1114-1124. SAGE Publications Inc. Qualitative Health Research Frey, I, De Boer, M E, Dronkert, L, Pols, A J, Visser, M C, Hertogh, C M P M & Depla, M F I A 2020, ' Between Choice, Necessity, and Comfort: Deciding on Tube Feeding in the Acute Phase After a Severe Stroke ', Qualitative Health Research, vol. 30, no. 7, pp. 1114-1124 . https://doi.org/10.1177/1049732320911370 Qualitative Health Research, 30(7), 1114-1124. SAGE Publications Inc. |
| ISSN: | 1049-7323 |
| DOI: | 10.1177/1049732320911370 |
| Popis: | This is an ethnographic study of decision-making concerning tube feeding in the acute phase after a severe stroke. It is based on 6 months of ethnographic research in three stroke units in the Netherlands, where the decision-making on life-sustaining treatment was studied in 16 cases of severe stroke patients. Data were collected through participant observation and interviews. For this article, the analysis was narrowed down to the decision whether or not the patient should receive tube feeding. The data on tube feeding were assembled and coded according to different modes of dealing with this decision in clinical practice, which we refer to as “repertoires.” We discerned three different repertoires: choice, necessity, and comfort. Each repertoire structures clinical practice differently: It implies distinctive ethical imperatives, central concerns, sources of information, and temporalities. We hope our findings can improve decision-making by uncovering its underlying logics in clinical practice. |
| Databáze: | OpenAIRE |
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