Psychometric field study of the new haemophilia quality of life questionnaire for adults: The 'Hemofilia-QoL'
Autor: | E Martínez, Víctor Jiménez-Yuste, Eduardo Remor, P. Arranz, J. F. Lucia, R Gonzalez-Boullosa, C Marrero, C Rincón, A Villar, M Quintana, C Sedano, M Prieto, I Soto, J L Diaz, M Moreno, Fernando Hernandez-Navarro, M Garcia-Luaces |
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Rok vydání: | 2005 |
Předmět: |
Adult
medicine.medical_specialty Activities of daily living Adolescent Psychometrics Health Status Concurrent validity Pain Hemorrhage Hemophilia A Haemophilia Patient satisfaction Quality of life (healthcare) Surveys and Questionnaires Hemarthrosis medicine Criterion validity Humans Genetics (clinical) Aged business.industry Reproducibility of Results Hematology General Medicine Middle Aged medicine.disease Mental health humanities Cross-Sectional Studies Patient Satisfaction Virus Diseases Quality of Life Physical therapy business |
Zdroj: | Haemophilia. 11:603-610 |
ISSN: | 1365-2516 1351-8216 |
Popis: | Although there is a worldwide interest in the assessment of health-related quality-of-life (HRQoL) in haemophilia patients, no non-disease specific instruments (for adults) are readily available. In this paper, a haemophilia-specific quality-of-life assessment measure for adults (the Hemofilia-QoL questionnaire) has been developed and tested for psychometric properties in 121 adults with haemophilia living in Spain. The Hemofilia-QoL questionnaire is a self-report modular instrument that assesses nine relevant HRQoL domains for patients with haemophilia (e.g. physical health, daily activities, joint damage, pain, treatment satisfaction, treatment difficulties, emotional functioning, mental health, relationships and social activity). Psychometric examination involved the assessment of data quality, scaling assumptions, reliability (internal consistency and test-retest) and validity (concurrent; external clinical criterion and sensitivity). The Hemofilia-QoL 36-item version questionnaire had acceptable internal consistency and retest reliability values. The questionnaire shows excellent concurrent validity (with the SF-36 Health Survey) and external clinical criterion validity (haemophilia clinical status) and sensitivity (health status changes) as well. The Hemofilia-QoL is now available for adult assessment and is ready for use in clinical research in Spain. |
Databáze: | OpenAIRE |
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