Expect the Unexpected: Adolescent and Pre-teens’ Experience of Diabetes Technology Self-Management
| Autor: | Heather L. Tubbs-Cooley, Mary Beth Happ, Lisa K. Militello, Eileen R Faulds, Margaret Grey, Robert P. Hoffman, Alai Tan |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Gerontology
Research design Insulin pump Male Adolescent Endocrinology Diabetes and Metabolism medicine.medical_treatment Health Behavior Glycemic Control Article Insulin Infusion Systems Diabetes mellitus Internal Medicine medicine Humans Insulin Child Glycemic Glycated Hemoglobin Type 1 diabetes Self-management business.industry Blood Glucose Self-Monitoring Self-Management medicine.disease Diabetes Mellitus Type 1 Adolescent Behavior Pediatrics Perinatology and Child Health Cohort Female business |
| Zdroj: | Pediatr Diabetes |
| Popis: | Objective Only 17% of adolescents with type 1 diabetes (T1D) are currently meeting their glycemic targets despite advances in diabetes technologies. Self-management behaviors and challenges specific to use of diabetes technologies are insufficiently studied in adolescents. We aimed to describe the experience of diabetes technology self-management, including facilitators and barriers, among preteens/adolescents with low and high A1C. Research design and methods Youth (10-18 years of age) with T1D who use insulin pump therapy were recruited from the larger quantitative cohort of a mixed methods study for participation in semi-structured qualitative interviews. Maximum variability sampling was used to recruit youth with A1C 9% (n=5). Participants' personal insulin pump and continuous glucose monitoring data were downloaded and served as a visual reference. Interviews were analyzed using a qualitative descriptive approach. Results Participants were 50% female with a median age of 14.9 years and 80% used CGM. The sample was predominantly white (90.0%). Analysis produced four major themes, Bad Day, Expect the Unexpected, Nighttime Dependence and Unpredictability, It's Really a Team and interconnecting subthemes. Youth characterized "Bad Days" as those requiring increased diabetes focus and self-management effort. The unpredictability ("Expect the Unexpected") of glucose outcomes despite attention to self-management behaviors was considerable frustration. Conclusions Diabetes devices such as insulin pumps are complex machines that rely heavily on individual proficiency, surveillance, and self-management behaviors to achieve clinical benefit. Our findings highlight the dynamic nature of self-management and the multitude of factors that feed youths' self-management behaviors. This article is protected by copyright. All rights reserved. |
| Databáze: | OpenAIRE |
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