Co-development of the CMAP Book: a tool to enhance children's participation in pediatric rehabilitation
| Autor: | K. Lehtonen, A. Kinnunen, Nea Vänskä, Ira Jeglinsky, Salla Sipari |
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| Přispěvatelé: | Faculty of Medicine, University of Helsinki |
| Jazyk: | angličtina |
| Rok vydání: | 2022 |
| Předmět: |
Male
Parents 030506 rehabilitation medicine.medical_treatment digital tool Co-development PART GOALS 03 medical and health sciences 0302 clinical medicine Agency (sociology) medicine Humans participation Family co-development Action research pediatric rehabilitation Everyday life Medical education children with disabilities Rehabilitation 4. Education Books DISABILITY Stakeholder Flexibility (personality) 3141 Health care science YOUTH General partnership Female HEALTH 0305 other medical science Psychology INTERVENTION 030217 neurology & neurosurgery |
| Popis: | PURPOSE The purpose of the co-development project was to create a tool that enhances children's active participation and agency in rehabilitation and in everyday life. MATERIALS AND METHODS Action research was the methodological approach. Participants in the different phases of the process (2015-2017) were children with disabilities, parents and rehabilitation professionals. The co-development process included: (1) designing the tool's first version, (2) piloting the tool, (3) evaluating the tool by collecting feedback and reflection, (4) generating the tool's final version. RESULTS Through the co-development process, an accommodating and digital tool called the CMAP Book-a description of the child's meaningful activities and participation-was developed. The CMAP Book is used with an electronic app enabling the identification and description of what is meaningful in daily life from the child's perspective with videos, photos, pictures, recording and writing. The tool enables the child, family and professionals to prepare and build collaboration in rehabilitation with flexibility according to child and family needs. CONCLUSIONS Use of the CMAP Book promotes the active involvement of the child and parents in designing the rehabilitation process in daily life in partnership with professionals. The stakeholder involvement in the co-development facilitated meaningful results and a concrete tool for rehabilitation.IMPLICATIONS FOR REHABILITATIONThe CMAP book is a new tool that enhances the child's active participation and agency in the rehabilitation process based on meaningful activities in everyday life expressed by the child.Identifying and utilising meaningful issues in the child's daily life through collaboration increases the child's commitment and motivation, and thus may enhance the benefits and effects of rehabilitation. Through co-development, the child and his/her family can be active and equal partners not only in development projects but also in the rehabilitation process.In the future, child-specific practices and policies should be developed to promote participatory co-research between families and clinicians linked to the daily lives of families with children. |
| Databáze: | OpenAIRE |
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