The Role of Social Media in Providing Support from Friends for Adolescent and Young Adult (AYA) Patients and Survivors of Sarcoma: Perspectives of AYA, Parents, and Providers
| Autor: | Sarah R. Martin, Elizabeth Donovan, Tara M Cousineau, Laura C Seidman, Laura A. Payne, Lonnie K. Zeltzer, Margorie Weiman, Marla Knoll, Noah Federman |
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| Rok vydání: | 2021 |
| Předmět: |
Gerontology
Parents Adult Male Pediatric Research Initiative sarcoma Adolescent Pediatric Cancer media_common.quotation_subject social media Oncology and Carcinogenesis Friends Nursing 03 medical and health sciences Social support Young Adult 0302 clinical medicine Clinical Research Neoplasms Behavioral and Social Science Medicine Humans cancer Social media 030212 general & internal medicine Survivors Young adult media_common Pediatric business.industry Perspective (graphical) Sarcoma Original Articles social support medicine.disease humanities Friendship Oncology 030220 oncology & carcinogenesis Pediatrics Perinatology and Child Health Public Health and Health Services Female business Social Media |
| Zdroj: | Journal of adolescent and young adult oncology, vol 10, iss 6 J Adolesc Young Adult Oncol |
| Popis: | Purpose: The aims of the current study were to better understand, from the perspective of adolescents and young adults (AYAs) with sarcoma, parents, and providers, the friendship support needs of AYAs with bone and soft tissue sarcoma and the role of social media in facilitating social support for AYAs with sarcoma. Methods: Semistructured interviews were conducted with 21 participants. AYA (n = 10) ranged in age from 14 to 23 years (mean 19.3, standard deviation 3.4 years; 50% female). All AYAs reported a current or past diagnosis of sarcoma, except for one patient who had another cancer diagnosis but was receiving treatment through the sarcoma clinic. Five parents of the adolescent participants were interviewed, as well as six health care providers. Data analysis was conducted using theory-driven immersion/crystallization, incorporating the Resilience in Illness Model as a framework to guide interpretation of the data. Results: Four main themes associated with social support from friends and social media were identified: (1) Social media provides a way to feel normal and connected to friends; (2) Social media accentuates the frustration of being left behind; (3) Social media facilitates the need to be understood by peers who have experienced sarcoma, and (4) Social media can lead to despair, and also provide hope for the future. Conclusions: Connecting with peers through social media can play an important role in providing support for AYAs with sarcoma, but it may also amplify feelings of frustration and anxiety. Future work is needed to determine intervention components that can maximize the benefits of social media for social support of AYAs with sarcoma. Clinical Trial Registration number: NCT03130751. |
| Databáze: | OpenAIRE |
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