Management of congenital ichthyoses
| Autor: | J. Mazereeuw‐Hautier, A. Vahlquist, H. Traupe, A. Bygum, C. Amaro, M. Aldwin, A. Audouze, C. Bodemer, E. Bourrat, A. Diociaiuti, M. Dolenc‐Voljc, I. Dreyfus, M. El Hachem, J. Fischer, A. Gånemo, C. Gouveia, R. Gruber, S. Hadj‐Rabia, D. Hohl, N. Jonca, K. Ezzedine, D. Maier, R. Malhotra, M. Rodriguez, H. Ott, D.G. Paige, A. Pietrzak, F. Poot, M. Schmuth, J.C. Sitek, P. Steijlen, G. Wehr, M. Moreen, E.A. O'Toole, V. Oji, A. Hernandez‐Martin |
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| Přispěvatelé: | MUMC+: MA Dermatologie (3), Dermatologie, MUMC+: MA AIOS Dermatologie (9), MUMC+: MA Dermatologie (9), RS: GROW - R3 - Innovative Cancer Diagnostics & Therapy, CHU Toulouse [Toulouse], Uppsala University, Westfälische Wilhelms-Universität Münster = University of Münster (WWU), Odense University Hospital (OUH), Hospital de Santa Maria [Lisboa], Ichthyosis Support Group, PO Box 1242, Yateley, GU47 7FL, U.K., Association Ichtyose France, Bellerive sur Allier, France., CHU Necker - Enfants Malades [AP-HP], Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP), Hopital Saint-Louis [AP-HP] (AP-HP), Bambino Gesù Children’s Hospital [Rome, Italy], University Medical Centre Ljubljana [Ljubljana, Slovenia] (UMCL), University of Freiburg [Freiburg], Skane University Hospital [Malmo], Lund University [Lund], Bern University Hospital [Berne] (Inselspital), University of Innsbruck, Centre Hospitalier Universitaire Vaudois [Lausanne] (CHUV), Unité différenciation épidermique et auto-immunité rhumatoïde (UDEAR), Université Toulouse III - Paul Sabatier (UT3), Université Fédérale Toulouse Midi-Pyrénées-Université Fédérale Toulouse Midi-Pyrénées-Institut National de la Santé et de la Recherche Médicale (INSERM), Epidemiology in Dermatology and Evaluation in Therapeutics (EpiDermE), Université Paris-Est Créteil Val-de-Marne - Paris 12 (UPEC UP12), Iuliu Hatieganu University of Medicine & Pharmacy, Queen Victoria Hospital NHS Foundation Trust, Hospital Universitario Son Espases, Children's Hospital 'Auf der Bult', Royal Free Hospital [London, UK], Medical University of Lublin, Oslo University Hospital [Oslo], Maastricht University Medical Centre (MUMC), Maastricht University [Maastricht], University Hospitals Leuven [Leuven], Catholic University of Leuven - Katholieke Universiteit Leuven (KU Leuven), Queen Mary University of London (QMUL), University Hospital Münster - Universitaetsklinikum Muenster [Germany] (UKM), Hospital Infantil Universitario Niño Jesús (HIUNJ) |
| Jazyk: | angličtina |
| Rok vydání: | 2019 |
| Předmět: |
VITAMIN-D DEFICIENCY
PREMATURE EPIPHYSEAL CLOSURE Consensus MESH: Dermatology / methods Administration Topical MESH: Social Support ORAL RETINOID THERAPY Administration Oral Genetic Counseling Dermatology MESH: Ichthyosiform Erythroderma Congenital / psychology 030207 dermatology & venereal diseases 03 medical and health sciences DOUBLE-BLIND BONE CHANGES 0302 clinical medicine Behavior Therapy QUALITY-OF-LIFE MESH: Dermatologic Agents / therapeutic use EPIDERMOLYTIC HYPERKERATOSIS Humans MESH: Consensus [SDV.IMM.ALL]Life Sciences [q-bio]/Immunology/Allergology KID SYNDROME MESH: Humans MESH: Behavior Therapy / standards MESH: Behavior Therapy / methods MESH: Ichthyosiform Erythroderma Congenital / diagnosis Social Support MESH: Quality of Life Ichthyosiform Erythroderma Congenital MESH: Dermatology / standards MESH: Administration Topical Europe HARLEQUIN ICHTHYOSIS MESH: Genetic Counseling / standards MESH: Ichthyosiform Erythroderma Congenital / therapy MESH: Administration Oral Quality of Life [SDV.IMM]Life Sciences [q-bio]/Immunology LAMELLAR ICHTHYOSIS Dermatologic Agents MESH: Europe MESH: Systematic Reviews as Topic [SDV.MHEP.DERM]Life Sciences [q-bio]/Human health and pathology/Dermatology Systematic Reviews as Topic |
| Zdroj: | Mazereeuw-Hautier, J, Vahlquist, A, Traupe, H, Bygum, A, Amaro, C, Aldwin, M, Audouze, A, Bodemer, C, Bourrat, E, Diociaiuti, A, Dolenc-Voljc, M, Dreyfus, I, El Hachem, M, Fischer, J, Gånemo, A, Gouveia, C, Gruber, R, Hadj-Rabia, S, Hohl, D, Jonca, N, Ezzedine, K, Maier, D, Malhotra, R, Rodriguez, M, Ott, H, Paige, D G, Pietrzak, A, Poot, F, Schmuth, M, Sitek, J C, Steijlen, P, Wehr, G, Moreen, M, O'Toole, E A, Oji, V & Hernandez-Martin, A 2019, ' Management of congenital ichthyoses : European guidelines of care, part one ', British Journal of Dermatology, vol. 180, no. 2, pp. 272-281 . https://doi.org/10.1111/bjd.17203 British Journal of Dermatology, 180(2), 272-281. Wiley British Journal of Dermatology British Journal of Dermatology, Wiley, 2019, 180 (2), pp.272-281. ⟨10.1111/bjd.17203⟩ |
| ISSN: | 0007-0963 1365-2133 |
| Popis: | International audience; These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016 and a consensus on the discussions. They summarize evidence and expert-based recommendations and are intended to help clinicians with the management of these rare and often complex diseases. These guidelines comprise two sections. This is part one, covering topical therapies, systemic therapies, psychosocial management, communicating the diagnosis and genetic counselling. |
| Databáze: | OpenAIRE |
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