Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group
| Autor: | Yongdong Zhao, Seza Ozen, Alhanouf Alsaleem, Fatma Dedeoglu, Samir Shah, Sivia K. Lapidus, Athimalaipet V Ramanan, Alexander C. Theos, Melissa Oliver, Aleksander Lenert, Cassyanne L. Aguiar, Karen Onel, A. Jayatilleke, Jonathan D Akikusa, Lori B. Tucker, Anja Schnabel, Matthew C Hollander, Beverley Shea, Farzana Nuruzzaman, Christian M. Hedrich, Polly J. Ferguson, Eveline Y. Wu, Philip J. Mease, Gabriele Simonini, Micol Romano, Emily Fox |
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| Rok vydání: | 2021 |
| Předmět: |
Adult
medicine.medical_specialty Hyperostosis Core domain Rheumatology Synovitis Acne Vulgaris medicine Humans Child Osteitis Acne business.industry Osteomyelitis Acquired Hyperostosis Syndrome medicine.disease Pustulosis Dermatology Anesthesiology and Pain Medicine Public Opinion medicine.symptom business |
| Zdroj: | Seminars in Arthritis and Rheumatism. 51:957-961 |
| ISSN: | 0049-0172 |
| Popis: | Objective A working group was established to develop a core domain set (CDS) for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO) following the OMERACT filter 2.1. Methods A scoping review to identify disease-related manifestations was performed, followed by a special interest group (SIG) session at OMERACT2020 to begin the CNO/SAPHO CDS framework. Results Candidate items were identified from the scoping review and most fell under Life Impact and Pathophysiology Manifestation core areas. A SIG agreed on the need to develop a CDS for CNO and SAPHO (100%) and for children and adults (91%). Conclusion Based on candidate items identified, qualitative research and Delphi surveys will be performed as next steps. |
| Databáze: | OpenAIRE |
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