Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project
| Autor: | Mathias Tong, Maren McLean Andvik, Murad Mustafa, Oliver Cuddeford, Maya Ibenfeldt, Petter Viksveen, Samuel Duerto, Nicole Elizabeth Cardenas, Laia G Meldahl, Lou Krijger, Julia Rose Game |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
Medicine (General)
Adolescent Process (engineering) media_common.quotation_subject VDP::Social science: 200::Psychology: 260 Altruism involvement law.invention shared decision‐making R5-920 law Medisinske Fag: 700 [VDP] Humans adolescents Project management media_common Medical education youth business.industry Self Samfunnsvitenskap: 200 [VDP] Communication Public Health Environmental and Occupational Health Uncertainty Mental health Mental Health Research Design VDP::Samfunnsvitenskap: 200::Psykologi: 260 CLARITY Spite Public aspects of medicine RA1-1270 business Psychology Diversity (politics) |
| Zdroj: | Health Expectations Health Expectations, Vol 25, Iss 1, Pp 322-332 (2022) |
| ISSN: | 1369-7625 |
| Popis: | Introduction In spite of adolescents' rights to be involved in decisions that concern their health and life, limited research has been published reporting on their involvement in mental health research. Therefore, we aim to present experiences and reflections based on the involvement of adolescents in mental health research, to describe the collaborative relationship between researchers and coresearchers, including the values that underpin their collaboration. Methods An autoethnographic approach was used, combined with group reflections. The process was jointly developed, carried out and analysed by adolescent coresearchers and the project's lead researcher over a period of 2 years. The article is jointly authored by the researcher and the ten coresearchers. Results Six themes were developed to describe our collaborative relationship, resulting in the involvement of adolescents in decisions about research priorities; in planning and carrying out the research; through to analysis, dissemination and communication of results. The themes include: (1) Commitment motivated by altruism, personal interests and a common purpose; (2) Inclusiveness and support to reduce social uncertainty and strengthen collaboration; (3) Reduced power differentials while ensuring clarity of roles and tasks; (4) Diversity in representation to expand the perspectives of 'the adolescent voice'; (5) Self-determination-supporting adolescents' involvement in decision-making processes; and (6) Flexible and systematic project management. The themes describe the collaboration, the underlying values and motives, the challenges faced and how they were overcome. Conclusion This self-reflective process describing a 4-year collaborative research project resulted in the development of recommendations for involving adolescents in mental health research. The recommendations could potentially contribute to a change of 'research culture' to expand the currently limited involvement of adolescents in research. Patient or public contribution Adolescents have contributed as coresearchers through all phases of the research project and as coauthors of this article, including planning, participation in the self- and group-reflective processes, analysis and authoring the article. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|
Plný text