The impact of severe asthma on patients’ autonomy: A qualitative study
| Autor: | Helen K. Reddel, Kath Ryan, Daniela Eassey, Lorraine Smith |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2019 |
| Předmět: |
severe asthma
Adult Male media_common.quotation_subject Severe asthma self‐determination theory Psychological intervention qualitative study Severity of Illness Index Interviews as Topic 03 medical and health sciences 0302 clinical medicine Nursing Humans Narrative 030212 general & internal medicine autonomy Self-determination theory Qualitative Research media_common Aged lcsh:R5-920 Information seeking lcsh:Public aspects of medicine 030503 health policy & services Public Health Environmental and Occupational Health Australia lcsh:RA1-1270 Middle Aged Asthma Original Research Paper Personal Autonomy Female lcsh:Medicine (General) 0305 other medical science Construct (philosophy) Psychology Original Research Papers Decision Making Shared Autonomy Qualitative research |
| Zdroj: | Health Expectations : An International Journal of Public Participation in Health Care and Health Policy Health Expectations, Vol 22, Iss 3, Pp 528-536 (2019) |
| ISSN: | 1369-7625 1369-6513 |
| Popis: | Background\ud People living with severe asthma may have ongoing debilitating symptoms despite high‐dose treatment. Clinical guidelines for severe asthma recommend concepts such as patient centeredness, shared decision making and self‐management, at the heart of which lies autonomy.\ud \ud Objective\ud This study aimed to explore the role of autonomy in patients’ narratives about their experiences of living with and managing severe asthma.\ud \ud Methods\ud In‐depth semi‐structured interviews were video‐ and/or audio‐recorded and transcribed. Data were categorized using a hybrid approach to analysis incorporating both inductive and deductive methods, informed by the self‐determination construct of autonomy. Analysis and comparison across and within categories were conducted to develop final themes.\ud \ud Results\ud Twenty‐nine face‐to‐face interviews, lasting 1.5‐4 hours, were conducted across Australia. Patients’ autonomy was enacted or challenged in a range of situations, such as interacting with health‐care providers, maintaining employment, managing symptoms, and dealing with threats to self‐identity. Two main themes were discerned from the analysis: (a) the desire to live an “unconstrained” life; and (b) preservation of self‐identity.\ud \ud Conclusion\ud Our findings suggest that autonomy is broader than conventional medical concepts such as decision making and information seeking. Future research should consider these findings when developing and implementing patient‐driven self‐management interventions for those living with severe asthma. |
| Databáze: | OpenAIRE |
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